Background Postural orthostatic tachycardia syndrome (POTS) is a complex, multifaceted disorder that impairs functional status and quality of...
From the article: [ATTACH]
A growing body of evidence suggests that postural orthostatic tachycardia syndrome (POTS) may be an autoimmune disorder. We have reported in a...
Hi @Woolie, Officially its Adalimumab prescribed for clinical non-radiographic axial spondyloarthritis. Unofficially the Rheumatologist was...
Speaking as someone that experiences inflammatory fatigue, its utterly bizarre that anyone informed could think its remotely comparable, or...
Mitochondrial Myopathy :)
For a patient perspective: I had a muscle biopsy taken in an NHS neuromuscular disease clinic. I believe the main indications were my very high...
I've also seen comparisons made to other known coronaviruses that, despite not mutating very much at all, appear to reinfect people every few...
Hi @MerryB, The paper just released and discussed below is probably a good start for explaining what might be happening here:...
Not wanting to rain on any Apple fan's parade, but in case its useful to someone you can get this stuff inc SpO2 monitoring in the £30 Huawei...
Hi @MerryB, I haven't tried Midodrine but can at least say I have had the same, very reliable 'viral like' response as part of PEM. I've been...
Ah, my mistake, I read that paper again and see the author (Systrom was just a contributor) used the term mito myopathy to describe both primary...
I haven't read that study for a while but i'm not sure if he went so far as to say there's definite mito disease in these patients. I suspect its...
Thanks for sharing that @MerryB. I would push for review at a Myopathy clinic, just in case. The approach at the NHS clinic I went to was a...
An anecdote that's sort of on-topic that people might find thought provoking: On holiday a few years back I woke up feeling awful, in a pool of...
Another way to look at that could be the low volume is compensatory to hypocapnia, correcting prior hyperventilation.
Its definitely not the case that 100% of POTS patients hyperventilate, its just a contributing factor in some cases (as with practically all POTS...
To give a clear example of how hyperventilation doesn't necessarily imply psychological cause: patients with mitochondrial myopathy hyperventilate...
Hi @duncan, It was my experience that I did not know I was hyperventilating. Hyperventilation does not require you to be breathing in a fast,...
Hi @lunarainbows, Upon standing its normal for your blood distribution to shift, as its pulled downwards by gravity. In a healthy person...
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