http://forums.phoenixrising.me/index.php?threads/horrifying-article-in-sunday-times.23050/ There's a quote in this newspaper article copied in...
This is the MRC page where they highlight that understanding mechanisms not essential or high priority...
The MRC around 2004 had a meeting where they decided we didn't need to understand CFSME to be able to treat it, AFAICs there was utter faith in...
Thank you. I thought it looked wrong!
https://www.bbc.co.uk/programmes/p05y3tpw 2:11 in. Very good interview from knowledgeable, sympathetic interviewer and great interview by SC...
We all have the goal of getting much more high quality bio research. It just hasn't happened. Obviously in uk there's many obstacles which imo is...
However whilst old age is associated with a big slowing Down , becoming weak, frail, aches painy, it's still not really ME-like is it? My Nan...
Its astonishing as unrest airs around the world that the highly controversial, incarcerator of Karina was chosen to speak. One can only assume...
So all the time the MRC were setting up and funding a platform for dementia they didn't think to do something similar for us till now? I was...
The cost quoted by Alzheimer's uk was £26b p/a. That's 8 times more than us (although I think £3.3b low as MS quote £3-4b) for a population 4...
Thanks I'm still a bit confused because the CMRC initiative (supposedly bringing lots of people together ) plus ring fenced funding could have...
The cynic would say that why they were transferred.
David Cameron is now president of Alzheimer's uk. I didn't know that thats a catch. As PM he was very behind increased funding....
I'm confused about this dementia type platform idea. If MRC have resolutely refused to inject sums of money into CFS both in 2007 and as a...
I'm less outright skeptical now necessarily but resentful. I really don't see how 10 years on from the setting up of the ME expert group (CMRC...
This looks really good. I'm severely affected and as this research has been emerging my mystifying dysfunction (rather than fatigue) seem to make...
This should have been MEA main aim for decades. Sophie's story isn't new or unusual. She's not a single Case. The severe form of ME should be...
Following on valentjin Regarding the report thing, 1) could this mean that the report will be "waited on," before action from funding and policy...
Really the charities involved could do us all a favour and do a Q & A on the FND study and the researchers. We have concerns eg around their...
What they're studying and definitions are important and not really covered much. To date they've been doing CFS research essentially with Oxford...
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