From 2004: A public statement by Chris Ellis: MEA Chairman Resignation Statement I have waited sometime before coming forward with my own...
As an example of the MEA's troubled past and how the opinions and actions of trustees of any charity do need scrutiny, I am attaching a PDF copy...
This post and the following ones have been copied or moved from this thread. The ME Association has, in the past, put Resolutions for proposed...
The ME Association has, in the past, put Resolutions for proposed changes to the wording of its Memorandum and Articles of Association (the...
I did manage to scrape together two, for Twitter: We struggle to identify a single "gain" except one - he has not required a new pair of shoes...
InfiniteRubix said: ↑ Back in 2003, Charles Shepherd did not hesitate to whistle-blow on the MEA's senior management and Board of Trustees...
And I wouldn't worry about upsetting CS. I've known him since 2003 - I can assure you he has a thick skin. Katie, who manages the MEA's Twitter...
And why publish the document and then ask for feedback? A draft could have gone out for consultation in ME Essential.
I'm sorry, but with a 33 year old whose life has been totally fucked up since the age of 12, I find it impossible to see any silver lining for him...
When my son was still under a paediatrician there was no service provision in Dorset for children and young people - a children's service was...
It's poorly written. As I've posted earlier in the thread, NICE CG53 implies all children with suspected ME, CFS should be under the care of a...
Even when CFS services are led by immunologists, they still appear to deliver CBT/GET and little else. The Dorset CFS service is led by a...
Whilst few of the NHS England "specialist" CFS and CFS/ME clinics appear to offer little more than CBT/GET (and some of these have been...
Yep, that always makes me laugh. The same has been claimed about AfME and how the ME orgs are "powerful lobbyist" groups.
I've just asked Katie, via PM, who is managing the MEA's Twitter feed, if she will forward concerns raised on Twitter to the MEA's Content Manager...
I am told that the person who manages the MEA's Twitter account is "a social media 'influencer' but is new to M.E. and still learning the ropes".
Yes, offensive is how I would describe it, too. I've conveyed my deep concerns via MEA's Twitter. And thank you @Sly Saint for a reminder of...
Absolutely. But suggesting any type of "gain" is inappropriate and a dangerous path to go down.
It's dreadful. This document needs pulling and putting out for consultation. Having ME may have enabled CS to spend more time with his family and...
Sorry, but WTF? Gains? As in secondary gains?
Separate names with a comma.
