If there are no 'good' options, the question becomes what is the 'least worst' ? In the current UK position holding on to the imperfect with the...
Absolutely this ^ The only thing I would add to your post, and to the points raised by Jonathan Edwards, is that the situation is especially...
Given that (it appears ?) that the patient voice is now informing research to a degree that has some significance, it is perhaps more important...
A study based on intentionally selecting for survivor bias. Applied to drowning this would include a) those who avoided water, b) those who only...
Research is always going to require a standardised protocol, so to actually get to a lab test CPET or some other measurable provocation is needed...
I think epidemiology is by far and away the number one research priority for ME/CFS however we need to understand what can be achieved, what needs...
Of course that would require wholly new large scale epidemiological studies - involving of course substantial costs. Studies such as this one are...
In the face of the pandemic/post pandemic pressures, a decade of systemic underfunding and the catastrophic understaffing occurring post Brexit,...
Looks like a fairly typical HR exercise of squeezing a new responsibility into an existing service, or shifting personnel across from one service...
An attempt by an independent observer to get the data: [MEDIA]
I'm not sure what progression you are referring to but historically, evidence based medicine was an attempt to overcome 'medicine by authority'...
Respecting a point of view doesn't mean unconditionally agreeing with it. The best arguments are between people who hold diverging views but who...
AfME has four PwME on a ten member Board of Trustees. It is very simple rule, if we want people to respect us, we have to respect them and if...
That makes the recent complaint even more dubious, and probably pointless, unless the intention was simply to get some bad press coverage for...
Absolutely this. There's much discussion here...
The Charity is a legal entity and the Trustees in place at any one time are legally the face of that entity and are responsible in Law for all...
As a measure of how complex these questions are, it was long considered that far from being a support for the immune system, high levels of...
How do you make sense of a chaotic system ? How do you make sense when comparing separate chaotic systems ? 5 dimensional multi directional...
I have very poor peripheral attention which means I'm always mashing up my hands, and in the garden that means infected cuts which then take ages...
Or whether any of these abnormalities are in anyway other than merely correlational with the causal pathology of ME/CFS ! Having a reading that...
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