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  1. Action for M.E.
    Post

    BBC Radio Northampton phone-in with Charles Shepherd

    Thank you for flagging this up @Amw66, and sorry I didn't see it sooner. Current capacity within my team dictates that I am not able to check this...
    Post by: Action for M.E., Aug 16, 2018 in forum: General ME/CFS news
  2. Action for M.E.
    Post

    Oxfordshire ME Group for Action (OMEGA) Experiences of Children with ME July 2018

    Thank for you for highlighting this @Amw66, I will share with the team here.
    Post by: Action for M.E., Aug 3, 2018 in forum: General ME/CFS news
  3. Action for M.E.
    Post

    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    Hi Sarah - I'm happy to address the questions that you've posted but I'm afraid I have run out of time before I go on annual leave. While my team...
    Post by: Action for M.E., Jul 10, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Action for M.E.
    Post

    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    Apologies for my delay in responding to this. Yes, we have been part of the Expert Advisory Group (EAG) for the joint Work and Health Unit. Our...
    Post by: Action for M.E., Jul 10, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Action for M.E.
    Post

    AFME seeking feedback on NICE

    Sincere apologies, my mistake. The figures should read (and they are slightly different now, as we've had more responses overnight): 40% of...
    Post by: Action for M.E., Jul 10, 2018 in forum: Advocacy Action Alerts
  6. Action for M.E.
    Post

    AFME seeking feedback on NICE

    If anyone is unable to complete the survey, but still wants to share their view for our response, please email us directly at...
    Post by: Action for M.E., Jul 9, 2018 in forum: Advocacy Action Alerts
  7. Action for M.E.
    Post

    AFME seeking feedback on NICE

    Thanks @adambeyoncelowe - this is really useful feedback and something we could consider when we survey people affected by the M.E. on the full...
    Post by: Action for M.E., Jul 9, 2018 in forum: Advocacy Action Alerts
  8. Action for M.E.
    Post

    AFME seeking feedback on NICE

    Hello, Clare from Action for M.E. here. Thank you @Cinders66 for sharing the link to our survey. When we respond to the NICE consultation on the...
    Post by: Action for M.E., Jul 9, 2018 in forum: Advocacy Action Alerts
  9. Action for M.E.
    Post

    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    While we don't know for sure if, without the support of the SEE M.E. project, those that took part would have still raised aspirations and...
    Post by: Action for M.E., Jul 3, 2018 in forum: General ME/CFS news
  10. Action for M.E.
    Post

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    The cost involves paying a day delegate rate (in excess of £50) which is set by the hotel. I will certainly ask our contact there if a half-day...
    Post by: Action for M.E., Jul 3, 2018 in forum: General ME/CFS news
  11. Action for M.E.
    Post

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    A single full day pass is the minimum available (the cost of which is substantially subsidised to make it affordable for people living with M.E....
    Post by: Action for M.E., Jul 2, 2018 in forum: General ME/CFS news
  12. Action for M.E.
    Post

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    Hi Clare at Action for M.E. here. I just wanted to offer a bit more information here, and to reiterate that everyone is welcome to come along (you...
    Post by: Action for M.E., Jul 2, 2018 in forum: General ME/CFS news
  13. Action for M.E.
    Post

    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    Thanks for your questions @Esther12. The outcomes of this project were self-reported, by the people who took part, many of whom were also...
    Post by: Action for M.E., Jul 2, 2018 in forum: General ME/CFS news
  14. Action for M.E.
    Post

    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    Yes, that would be helpful - thank you. If you'd prefer to email me I'm on clare@actionforme.org.uk
    Post by: Action for M.E., Jun 29, 2018 in forum: General ME/CFS news
  15. Action for M.E.
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Hi, Clare here from Action for M.E. I'm sorry about the time it's taking me to respond to questions/posts - I have had to focus on other things...
    Post by: Action for M.E., Jun 29, 2018 in forum: General ME/CFS news
  16. Action for M.E.
    Post

    Correspondence from the DWP for 2005

    Hi, Clare here from Action for M.E. I'm sorry about the time it's taking me to respond to questions on the forum - I have had to focus on other...
    Post by: Action for M.E., Jun 29, 2018 in forum: General ME/CFS news
  17. Action for M.E.
    Post

    Video: The PACE trial: a short explanation, Graham McPhee

    Thank you @Graham, I will share this with the team. I'm sorry about the time it's taking me to respond to questions/posts - I have had to focus...
    Post by: Action for M.E., Jun 29, 2018 in forum: ME/CFS research news
  18. Action for M.E.
    Post

    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    Thanks @Trish. Our rationale for recommending Paul was that, given the event was confirmed and going ahead, it would benefit those attending to...
    Post by: Action for M.E., Jun 29, 2018 in forum: General ME/CFS news
  19. Action for M.E.
    Post

    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    Hi, Clare here from Action for M.E. I'm sorry about the time it's taking me to respond to questions on the forum - I have had to focus on other...
    Post by: Action for M.E., Jun 29, 2018 in forum: General ME/CFS news
  20. Action for M.E.
    Post

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    A couple from the International Alliance for M.E. protest in Geneva [MEDIA] [MEDIA]
    Post by: Action for M.E., May 12, 2018 in forum: General ME/CFS news
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