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  1. Action for M.E.
    Post

    World ME Alliance, was previously IAFME: International Alliance for ME

    The IAME members are listed on our international advocacy page, and you can see pictures, shoes and stories shared at the IAME #MillionsMissing...
    Post by: Action for M.E., May 12, 2018 in forum: News from organisations
  2. Action for M.E.
    Post

    World ME Alliance, was previously IAFME: International Alliance for ME

    As we say here, we are extremely resistant to any move attempting to reclassify M.E. as a "medically unexplained symptom." I emailed the...
    Post by: Action for M.E., Apr 30, 2018 in forum: News from organisations
  3. Action for M.E.
    Post

    What is Action for ME's current (March 2018) position on the PACE trial?

    We have now published an updated information page on GET and CBT, which links to our landing page on treatment and management. We know that...
    Post by: Action for M.E., Apr 18, 2018 in forum: General ME/CFS news
  4. Action for M.E.
    Post

    What is Action for ME's current (March 2018) position on the PACE trial?

    Hello, Clare here. I appreciate your patience given that I haven’t been able to give the forum my full attention recently. You have asked about...
    Post by: Action for M.E., Apr 3, 2018 in forum: General ME/CFS news
  5. Action for M.E.
    Post

    PACE trial TSC and TMG minutes released

    Hello, Clare here. Action for M.E.'s Chief Executive Sonya Chowdhury has been on annual leave (and is still out of the office) but has asked me to...
    Post by: Action for M.E., Apr 3, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Action for M.E.
    Post

    Excellent radio Bristol Sonya chowdhury interview

    Thank you for your feedback on this interview, which I've shared with Sonya. I agree that the phrase "public health scandal" is effective and we...
    Post by: Action for M.E., Mar 21, 2018 in forum: General Advocacy Discussions
  7. Action for M.E.
    Post

    Action for ME has joined S4ME

    Hello I'm here to respond to some of the issues raised on this thread. I'm not able to address all the questions you have asked in one post –...
    Post by: Action for M.E., Mar 21, 2018 in forum: General ME/CFS news
  8. Action for M.E.
    Post

    Action for ME has joined S4ME

    Thank you @TiredSam and others for your welcome! I’m going to answer a couple of this thread’s most recent questions. Plus I’m also taking a look...
    Post by: Action for M.E., Mar 16, 2018 in forum: General ME/CFS news
  9. Action for M.E.
    Post

    PIP Tribunal

    Hello - we regularly respond to Government consultations on welfare benefits, and survey people with M.E. to do this, so yes, absolutely. We have...
    Post by: Action for M.E., Mar 16, 2018 in forum: Work, Finances and Disability Insurance
  10. Action for M.E.
    Post

    Action for ME has joined S4ME

    Hello – it’s Clare Ogden here, I’m Head of Communications and Engagement at Action for M.E., and I’m posting on behalf of the charity. It is our...
    Post by: Action for M.E., Mar 16, 2018 in forum: General ME/CFS news
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