So the POTS patients studied must have occupied an awkward middle ground of lying down long enough for mechanisms to effect their venous return...
I'm confused - doesn't deconditioning lead to high filling pressures? I thought a key take-away from Systrom's POTS work in 2016 was: cardiac...
Impedance plethysmography has been used in POTS studies to show the fractional change in regional blood volumes. Its not precise enough to...
Check out Julian M. Stewart's studies. Their group's work has explored cardiac, respiratory & SNS observations in POTS and their order of...
IBP is the key symptom of an axial spondyloarthropathy - ankylosing spondylitis is the prototypical form, but other types can cause it too. It's...
I'd be really interested to get your opinion on something related that also seems quite contentious @Jonathan Edwards - would you consider axial...
I imagine this is probably contentious but I have seen 95% listed for Caucasian, 80% for Mediterranean and only 50% given for African American AS...
If your symptoms persist @andypants don't let the negative HLA-B27 status stop you from investigating further. Plenty of people in AS groups are...
Hi @Dechi, Your symptoms & their timing sound a lot like inflammatory back pain to me. I would often find that changing position would give some...
I disagree and think there is much to be gained by seeing a specialist in a hypermobility clinic, though perhaps not directly for help with 'EDS'...
Reminds me of my cardiologist, who I respect very much, giving a lecture to his peers on POTS & MCAS. He promoted MCAS awareness by casually...
I know your pain @TiredSam, 190cm (6ft 3") here. In my case the (average male height) plumber had to take out the nice new shower tray, redo all...
For what its worth, I can offer my own N=1 experience having had CFS diagnosis (strict criteria) for decades and now, much more recently, the...
Yes I'd agree with that. My autonomic function clearly deteriorates with over-exertion, poor sleep, infection and most other stressors....
Post-nasal drip (presumably rhinitis) has always been and remains an excellent sign-post to my current physical state. On better days its a small...
Hi @am1978, In the context of dysautonomia eating does not preclude a low blood sugar event, in fact it may actually precipitate one. In...
Its obviously a very poor analogue but I do wonder if there could be at least some relevancy, given how similar PEM can be to overtraining syndrome.
Can't help but wonder how many of these CFS patients had an undiagnosed hypermobility condition - gastroparesis is a well recognised complication.
Hi @sb4, Yes, its an Electrophysiologist at Kings NHS trust. He seems to get the whole POTS/EDS/MCAS/SFN constellation and refers on as...
You can add Microneurography to that list. I had it done yesterday and it found evidence of autonomic SFN. Really fascinating technique, I...
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