I really respect Systrom's work - it couldn't have been easy to convince funders/patients to do invasive CPET studies!! Nice to see him coming...
Glad I could help. Yes, I think the effects of these episodes are incredibly draining and that fact perhaps isn't well enough recognised. The...
I'm not 100% clear on what you have written, perhaps some auto-corrects are not helping. It sounds like they did a ACTH stim test to exclude...
Best of luck with the changes, I hope they help again. The NMH would put you in an OI category, where many of us are overly sensitive to carbs....
You're not alone, I see a significant reduction in PEM severity and recovery time when eating very low carb. Another nice bonus on top of having...
This advice serves most people well but as @Keela Too mentions, it is sometimes not appropriate depending on the cause of the hypo. My experience...
I had similar sort of tinnitus symptom before I went very low carb high fat, I had assumed it was blood glucose related too. Normal hearing would...
This was basically the response I had from a doctor when I brought it up, awareness seems limited to very significant congenital disorders. The...
This happened to me also, the myologist was very much on the fence over the need for a muscle biopsy. Luckily I returned a rather high blood...
I agree it seems implausible to not suspect Mito disease based on symptoms but all the reports so far suggest Mito disease is just as rare in CFS...
Its kind of you to ask, thank you. I will PM with more detail if you're interested? But as it's sort of related to my point above, in brief I've...
This doesn't surprise me at all now after spending the last 3 years actively pursuing more accurate diagnosis, subsequent to 20 years of a useless...
It is important to test both as different bacteria produce different gases. Whether the substrate is glucose or lactulose can be important too,...
My honest feeling, and I hope you don't take it the wrong way, is that you'd be wasting money on investigations without having professional...
Hi @Arnie Pye, GI health is an incredibly complicated thing to try and understand yourself - I know you say you don't want to involve the medical...
Sorry, @NelliePledge, I don't recall if he discussed the lymphatic system. He certainly felt that poor sleep, evidenced by parasympathetic...
Baraniuk's talk was entertaining and thorough, though not particularly remarkable. I thought it illustrated quite clearly the failure of the NIH...
I came away with more the opposite feeling, that it is a gargantuan task and we're still at the starting line. Something that always confused me...
If you found the sleep study presentation interesting you might also enjoy this: [MEDIA] Its focus is on sleep abnormality in POTS patients but I...
I enjoyed the first half of this lecture on sleep abnormality and gylmphatic drainage. Unfortunately he then went off on a tangent, digging up...
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