Julian Stewart and Andrew Del Pozzi ran studies and published papers detailing what I assume is a similar train of thought, @Jonathan Edwards. I...
Everytime I hear someone saying how much worse they are after eating, a part of me shouts "go see a good GI doc for transit tests now!". These...
@Invisible Woman & others, I just realised Prof Aziz has an updated version of that presentation, complete with video: [MEDIA]
I'd encourage anyone having post-prandial issues in the context of autonomic dysfunction (so the majority of us with ME) to read the theories...
I'd be interested to know the type of onset experienced by the otherwise relatively healthy 'idiopathic anaphylaxis' group. Would seem neat and...
Interesting to briefly hear their thoughts on sub-types of MCAS at 19:40. Having spent some time on MCAS patient groups its quite apparent that...
Unfortunately not. The good news is that in some cases you can throw some quite safe (some even OTC) meds at it and usually see some improvement....
Hi @Esther12, Tryptase can be done fairly routinely on NHS I believe. Unfortunately, like most of the other MCAS tests, it's reliant on a sample...
Hi @andypants, I wouldn't lead with anything non-specific like cognitive fog, fatigue or headache as a primary complaint. Don't even bother...
Similar to other reports, my early symptoms were dominated with: - Very frequent & severe migraine with cyclic vomiting - Calf ache, worse at...
I use the screen clipping tool that is part of Microsoft Office OneNote - not sure if you have that or if it provides same functionality on Mac....
Hi @Gingergrrl, I took a screengrab of the page you referred to, it is useful to see the neuronal & systemic categories. [ATTACH] Ryan
Hi @Gingergrrl, Good summary. Did you watch the other video too? I think it may be even more relevant to you. [MEDIA] Its obviously only one...
Oh, that reminds me, one possible cause of elevated B12 I did find was attributed to gastrointestinal bacterial overgrowth. I have had confirmed...
MMA never got done because the NHS lab had a high (aka 'normal' as far as they are concerned) serum test on record. I should really follow it up...
@Scarecrow You can self refer and have the tests done by MediChecks in the UK. MMA and homocysteine are £100 each. Serum B12 & Active B12 together...
NHS lab were willing to do an MMA test for me, recommended by private endo, my GPs had never heard of it. But it got bounced back by lab because I...
Hi all, Curious to know if anyone here has Zoster sine herpete (Shingles without a rash)? I'm currently waiting for a neurologist to tick-off...
I can relate to this but PEM and the illness were still there, just so mild that it took several days of high exertion to trigger it. During...
I had taken remission to mean partial remission in this scenario. I thought if the illness was completely gone it was referred to as complete...
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