This is related to David Systrom's earlier work (he's an author on the paper this article refers to). He's published other work using these...
Its a shame this cohort wasn't tested for wider dysautonomia. But it was a larger sample size compared to previous studies and combined...
Functional and structural impairment of small nerve fibers in patients suffering from hypermobile Ehlers Danlos Syndrome/Hypermobility Spectrum...
Its not particularly difficult/painful to take an earlobe capillary blood sample and estimate arterial blood gases from that - I had this done...
As with a lot of this OI stuff it has been explored in greater deal, often with controlled studies, in the POTS literature over the past decade or...
I was able to get a repeat prescription of the latter from GP after recommendation from Neurology consultant. It was speculative, I'd taken it...
Thanks for sharing. There are clinicians at KCH that offer exceptional care & awareness for autonomic dysfunction, small fibre neuropathy etc....
No, hasn't been an issue for me.
The study I linked wasn't using the sort of seamless compression garment that you roll up your body, it instead used separate bindings - much...
Its a shame they didn't try abdominal binding to see if that was superior to leg compression, as found in the recent similar POTS study:...
@SNT Gatchaman I suspect you have seen Blair Grubb's intro to this study broadcast last night? If not & for the benefit of others, it can be...
Way to confuse people (me) by using the acronym "EDS" without first noting they mean "Excessive Daytime Sleepiness" and not "Ehlers Danlos...
They've been selected for this attribute. The Panic cohort all received a prior panic attack diagnosis from psychiatry, before being referred to...
Where does it say patients were told to overbreathe? And if so, why would they tell POTS patients to increase tidal volume but not respiratory...
There are published observations going back 15+ years of a subset of POTS patients hyperventilating on orthostasis, they do not need to be told to...
There have been a number of controlled studies and publications on this topic from JM Stewart's group. This one is perhaps relevant here for the...
There's a growing body of evidence to show hyperventilation is a problem for a significant minority of POTS patients. This evidence is also...
Its a shame that the COVID gravy train seems to be open to all. I can't see much evidence here that these researchers understand this field,...
Had my "third primary" dose a couple of weeks ago, this time a Pfizer (first 2x were AZ). I'm due for a 4th dose, the "booster", in 6M time. This...
As the discussion has drifted more specifically to SFN & receptor antibodies I wanted to share this video: [MEDIA] Its a general roundup/opinion...
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