Would be interested to know if anyone here has an understanding of this point made in the paper. Specifically how that might relate to David...
Useful summary & comments, @Hutan, thank you. Interesting study for me as lower leg pain was one of my primary complaints at on-set, long before...
Leg pain in neuropathic postural tachycardia syndrome is associated with altered muscle membrane properties, 2021, Rodriguez et al Abstract...
The JACC paper I mentioned looked specifically at POTS patients that were classified hyperadrenergic, i.e. the ones prone to bouts of upright...
Someone might want to send the author this paper! :facepalm: Effect of High Dietary Sodium Intake in Patients With Postural Tachycardia Syndrome...
Very true. Time and time again we see these clinicians saying what a heterogeneous bunch we are and that as a result we need a wide range of...
Happy to forward the original email chain to MEA parties for full context if they wish to see it. I think Findley's lack of professionalism in my...
Unfortunately I can see the similarity in his general behaviour towards me. Something I do remember clearly: He told me he was amazed that I had...
I saw Findley in 1996 or thereabouts in his private clinic. He was able to get my very severe chronic migraine under control and also diagnosed...
Agreed - often hear talk of counter manoeuvres that people have subconsciously adopted before even knowing they have OI. I've personally always...
The CFS patients had all been referred to an immunodeficiency outpatient clinic - its reasonable to assume their GP's had suspicion of immune...
Until the last few years my sensation of body temperature always went the other way, with PEM or orthostasis I would be sweaty and uncomfortable....
They are apparently available on the NHS but I was advised by consultants that GPs struggle to find them on the system, often easier to just buy...
Amazon have a variety available, search term "abdominal binder". I didn't want to spend too much on a trial so went for a £12 "NeoPhysio" brand....
I can't tolerate full length trousers most of the time, let alone lower body compression gear. I wear shorts for most of the year and only light...
There's a useful presentation on this study from the authors here: [MEDIA] For what its worth I've been using abdominal compression for a while...
ACE2 has been looked at by a few groups in POTS research previously. Findings suggested there is deficiency of ACE2 in POTS patients & increased...
This would get you a hyperventilation syndrome diagnosis pretty quickly in clinics. Its pretty textbook. Forced hyperventilation screens are...
Why is a comparison of VE to controls useful in knowing if patients are hyperventilating? Isn't the ratio of VE to CO2 the important factor? If...
Hyperventilation of this variety is commonly seen with POTS patients. Had the same result myself on CPETs, breathing rate far slower than normal...
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