Abstract Background High sodium intake is recommended for the treatment of postural tachycardia syndrome (POTS) to counteract the hypovolemia and...
I'm in no position to comment on the validity of the science but one of Fedorowski's more recent videos discusses how viewing these antibody tests...
Some of these GPCR autoantibodies have been found in a majority of POTS patients previously. There's been similar studies in broader CFS with...
From the study:
Objective: To report a case series of patients with neuropathic POTS and cutaneous phosphorylated alpha-synuclein (P-SYN) deposition on skin...
I was advised to start with 30mg TID with a gradual increase to 60mg TID. Experience has taught me to be extra cautious so started with 15mg once...
I'm really sorry to hear that @Perrier :( I found the side effects annoying but thankfully tolerable and eventually they wore off. I had to start...
Pyridostigmine has been a fantastic PEM-busting drug for me, huge improvements in both threshold to PEM and recovery time from PEM. I was only...
Yes, there are randomised controlled trials showing the value of drugs like pyridostigmine & ivabradine in OI patients. From memory these trials...
Don't tell my GP, i've had Circadin prescribed by them for a few years after a sleep specialist neurologist recommended it (in my 30s) :whistle:...
Do you have any contact with respiratory physio's attached to autonomic clinics? I wonder if their experience might be helpful. My cardiologist...
Excellent post @Peter Trewhitt. After a couple of decades of experience pacing, and in recent years a great deal more awareness, adaptation and...
100% agree with this and can very readily differentiate the same day onset of POTS OI related fatigue vs the delayed (next day) onset of PEM. At...
I've had a Noblechairs Epic for the past 18M or so and it's been wonderful. It gets a LOT of use at my desk and still looks and feels great - a...
Mast cell "issues" are often considered as overlapping in Dysautonomia/POTS clinics. There's a sensible reluctance to call it MCAS and read into...
I received the AZ/Oxford vaccine 2 weeks ago, I'm included in CEV group 4 due to taking immunosuppressants + cardiovascular comorbidity. I had...
Exercise is important in the context of cardiac deconditioning, so when managing POTS it can't be ignored. But with that said, exercise is also...
I imagine that's related to this work:...
POTS has been understood & described as the "final common pathway for a number of overlapping pathophysiologies". In the context of simple,...
Pleased to see some higher quality evidence for use of Ivabradine in POTS. Its been prescribed by the experts for years, I have been taking it...
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