Great interview by the family. They convey things well in a very moving way and it’s amazing they are still advocating post all what’s happened...
Wesley and Hawkins, wessely and jo brand, wessely and Stephen fry, wessely and prince harry, wessely Regis professor, working for government and...
AFAIC the jury is out onstimulants for concentration and memory, I've seen mixed remviews in the mild - still at school work - and certainly in...
I think Jason was very principled in his actions initially when everyone feared the IOM was going to be a massive stitch up. Some maintain it...
In this discussion of criteria perhaps we need to be mindful of the now dominant in the UK NICE criteria which requires as minimum just fatigue,...
My understanding of the Jason SEID study was he was using a very weak definition of PEM as you quote, whereas SEID criteria IOM I think go beyond...
In a cash strapped era CFS services are seen as an area they can get away with skimping on. It's been like this always. Even dr bansals service,...
Isn't a part of the problem that we have few Drs/researchers involved in our field for news to travel and networking to occur and all those who...
Wow, that was a short reply. I agree with Sasha, the answer to you need to put in a lot more money isn't "we put in a little money previously"....
I was reading about dementia research, which is really taking off for various reasons. I saw that there's been a target set for some form of...
Should we be writing to scientists directly to inform them of ME/CFS as a worthy, interesting area they might like to consider. Isn't a problem...
I think it is good AFME are seeking patient feedback. The issue I have as expressed here is the fact that they often don't do a great job at...
It's less about cause than about establishing our abnormal PEM weakness on exertion, through 2 day testing. The research contrasting us with MS...
I'm not remotely capable of doing this, but if it's so widely available and not hugely expensive it's sad no one in the uk has had the interest or...
Interesting idea, the others could Stay the same.
The prognosis section suggests most people are just rising up to the surface - to remain mild - but not fully making recovery. Is this borne out...
But AFMEs stance carries weight, it justified PACE, it can justify a weak modification of the status quo.
It is a shame people can't just try melatonin rather than research funds having to prove it but aren't MEA funding a study? I think it's a shame...
I'd like the American CPET exercise testing done on a sizeable level to get that abnormality established as fact so it's recognised, especially in...
Yes you're right
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