But th But they haven't over thirty years been successful so what are they then doing wrong? Are they not employing the right staff? We can't...
Unfit in middle age: Are you doomed? http://www.bbc.co.uk/news/health-44468755 Mentions "frailty" in middle age as higher risk of early death &...
Anyone think the whole SMC involvement was wierd in the first place, if they're being let go now because of altered definition & independence,...
The original PAG did publish the list of names of those who agreed to be known. To be a member you had to be broadly supportive of the MEGA...
IF CMRC really wants to claim patient engagement they should cosider holding phone ins like the nih where un selected patients can ask questions...
It is unforgivable to me that funds weren't pitched for after the Gibson report, or after the 2012 one off ring-fenced allocation. We didn't have...
As collaboration is the buzz word, I can see why being able to quote another major body as part of your movement is useful. Of the U.K. Research...
Me too. They can't just act as if the past twenty years haven't bern totally wasted and expect the patients who've lived and suffered through that...
[ATTACH] [ATTACH] https://www.actionforme.org.uk/uploads/images/2018/05/Draft_Chair_approved_mins_24.4.18.pdf I don't know if this has already...
I haven't seen this but think one of the posts is alluding to the stuff probably going on behind the scenes at the moment with MRC on funding and...
I agree with sunshind3. The parameters of the ME spectrum are the minority who almost recover to the extent they can live symptom free to the...
The ME association had a page for people who wanted to do unrest screenings with tips and advice etc. One part was suggesting people contact the...
The problem with this for patients is that to us this isn't a matter to be debated, researched and only then proven, once the evidence supports...
I'm unsure about that statement, people like Nigel Speight have used that terminology primarily biological or physical , probably in context of...
I think AFME were just given the peter white pain study, if that's what is being referred to, to continue once the group "CFS something or other"...
I think iimes tone is sometimes unhelpful and they have chosen often (many would say rightly) to stand aside so therefore expecting inclusion is...
Lots to look good about the 2 PhD projects AFME are part funding. Regarding FND my concern is regarding the mark Edwards research ad the idea is...
IBS fatigue vs ME , not comparable in my view. Trivialises to say we share some of theirs, they some of ours
If the feature is already recognised in cancer and MS has it lead to any treatments especially in MS?
Dr Nina muirhead can be seen on a video on AFMEs page where she attended their Geneva thing and gave a talk. [MEDIA] I'm all for medics getting...
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