I also find that I get cramp in the muscles I am trying to use - this happens much more quickly when I am more exhausted. I can get cramp in my...
$98,158 and 1000 donors. Party on people!
I have a relative whose undiagnosed muscle issue was made significantly worse by statins. Also developed Diabetes...
That makes me feel anxious..... I’d rather have no guidelines than poor guidelines. I just hope that there’s no BPS component.
@Trish I think they must be using the modernized Barthel - where the scoring is changed to 0-20. So unable to do something scores 0, needing...
I’m a speech language therapist. (And I own several blue cardigans :D). Most of my former colleagues in the medical field, in fact practically all...
I had a pet rabbit- lived in the house, and I housetrained her. She was very cute. In the morning I would let her out of her hutch and she would...
In a strange coincidence, here is the obituary of the man responsible! https://www.thetimes.co.uk/edition/register/bill-heine-obituary-06fbbkj7v
@RoseE - I totally agree that DSS would be more help... I’m sorry you had such difficulty accessing LTS and that getting a wheelchair is so hard....
in my experience from working in DHBs, the funding for chronic health condition support is much more stretched than for disability support. I...
I think that it will be a challenge to get the MoH to see ME as something causing disability. Having said that, I do think this is a very good...
Thanks! Everything else is negative...anti-DNA, ENA, sceldroderma and lupus markers all clear.... My ANA result has been stable at that level for...
Thanks @Jonathan Edwards for that. I have anti-centromere levels of 1:1280. It was the rheumatologist who just ordered the latest round of...
Has anyone had their complement levels tested? Is a low C3 relevant??? My C4 has come back at the bottom of the normal range, and my C3 is below...
I’d be interested to look at those individuals in the rituximab group who did improve. Were there any genuine responders even though overall there...
:cry:
Done. Thank you David!
I had a rheumatologist appointment today. She told me that central sensitisation had been proved to be a real phenomenon.... Can anyone point me...
My understanding of this is that the conflict here is arising from many S4ME members wanting to have certainty about the facts. We are very used...
Am I being stupid about this - if this study was a retrospective search for specific symptoms, surely these symptoms might have been recorded...
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