Moderator note: A number of posts on this thread were in breach of Rule 1 - no personal attacks or public accusations. Accordingly, some posts...
I think the strongest evidence for pathophysiology currently is that patients all around the world describe their symptoms in similar terms......
I’ve just been looking at the Trust on the Charities Register. It was set up in late 2017 with the purpose of providing respite. Currently they...
I’m fairly certain that a device like this would make me feel very unwell very quickly. Travel in a car or train where there is vibration makes me...
Or indeed, it’s profound bloody tiredness before, during and after accustomed activity...
I can’t access the sci-hub link...:(
A very good article I think.
Wouldn’t it be nice if in fact a balanced article appears - but I rather think it is more likely no article will appear if the newspaper has...
Amitrip really doesn’t agree with me - even at 5mg doses. I just get lots of side effects and no benefits. I have resisted trying anything else.
The management section is not good. It’s almost like it’s been done in two halves by different people. The first half on diagnosis and symptoms is...
Moderator note - please be mindful and stick to posting on the thread topic - the quality of life study.
So pleased for you @Woolie :) - long may it continue!
I don’t have a baseline, I just have a limit that I need to not exceed. That limit varies from day to day, week to week. It doesn’t seem to depend...
When you read further on their page, it says that this fundraiser was designed by people with ME, and it says that people need to make sure they...
But maybe, just maybe, it might change how ME is perceived.....?
Plus - it seems to me there’s an assumption that it’s just exercise that’s the problem. Which I guess is not so surprising given that the...
No no - we can’t be trusted to do that. Don’t you know we have no idea how to manage our lives at all....
I find that graph of GP visits/prescriptions very interesting. Surely this is something that could easily be looked at further?
This seems to me like they believe the only reason we can’t exercise is because we’re doing it wrong....
It strikes me that although I am probably as active as most ‘sedentary’ people, looking at activity for every minute would show how slowly I’m...
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