It would be so interesting to know if the same genes are downregulated in ME/CFS. Will maybe DecodeME answer this question?
I am om both SSRI and LDN and yet I’m still severe and bedbound. These meds don’t even scratch the surface, I don’t know why scientists keep...
This sounds like an excellent plan, I hope they will implement it quickly so that people who are affected actually get help.
This is such an interesting question. I had a very weird experience once, which made me wonder if there is an off switch. Two years ago I had...
I was misdiagnosed for a decade, until I finally got a referral to an ME-specialist, who immediatedly recognized what I had. Until we have some...
I think the same will probably turn out to be the case for people with bona fide ME/CFS. They will have a common underlying mechanism, but with...
At the ME-clinic where I received my diagnosis before it was closed down, they gave patients B12 shots on prescription. I know several people who...
That’s a very good point.
Maybe DecodeME will shed some light on the matter. But so far, from what I’m reading, it is clear nobody really knows.
That’s the part I struggle with. How can different biological mechanisms create the same unique characteristic, namely PEM? To me it makes more...
This conclusion shows that ME/CFS is a huge burden for families and society, who become responsible for supporting the individual financially....
I am wondering if someone here would be kind enough to explain what ”subgroups” means in the context of ME/CFS. I hear the word mentioned very...
Sad news.
Sasly, I think all ME/CFS patients suffer some trauma due to disbelief and gaslighting by doctors. I remember vividly during the first years of my...
I might be cynical, but I don’t believe CBT helps at all. Not even in coping with the disease. I did CBT for 4 years when I first got ill in...
I hope it’s ok to post this, if not, please mods be so kind as to delete it. I saw this on Twitter. [MEDIA]
The 1177 healthcare page for my municipality states something like ”a few studies show patients improve with physical exercise”. This is never...
As someone who has been slowly and steadily deteriorating for 14 years I voted ”no”. I think the effects of not being able to recover are very...
I did not meet another patient with ME/CFS for more than a decade after becoming ill. I was shocked to discover other people characterized that...
The article is a disgrace. I can’t believe how tone-deaf he is. He obviously hasn’t bothered to read and understand the criticism. This guy should...
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