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  1. CRG
    Post

    PaxMedica Plans to Initiate Phase 1B Study for PAX-101 (Suramin) in Patients with Long COVID-19 Syndrome

    "People who suffer from Long COVID Syndrome and ME/CFS have nearly identical physical symptoms" this is becoming a pervasive meme that seems...
    Post by: CRG, Jan 7, 2022 in forum: Long Covid news
  2. CRG
    Post

    Lasting Immunological Imprint of Primary Epstein-Barr Virus Infection With Associations to Chronic Low-Grade Inflammation and Fatigue, 2021, Wyller

    Quotes Hickie et al 2006 to support the claim that: "Fatigue is a particularly prominent feature of acute EBV infection and can last for months...
    Post by: CRG, Jan 7, 2022 in forum: ME/CFS research
  3. CRG
    Post

    PaxMedica Plans to Initiate Phase 1B Study for PAX-101 (Suramin) in Patients with Long COVID-19 Syndrome

    Truly ground breaking (or perhaps not) https://en.wikipedia.org/wiki/Suramin "Suramin is a medication used to treat African sleeping sickness and...
    Post by: CRG, Jan 7, 2022 in forum: Long Covid news
  4. CRG
    Post

    Closed Uni of Edinburgh: Irritable bowel syndrome (IBS), chronic fatigue syndrome (CFS) and fibromyalgia in those aged 45 and older – the impact of emotions

    Theory testing - I couldn't guess which particular suite of psych theories the individual is signed up to but the research has nothing to do with...
    Post by: CRG, Jan 6, 2022 in forum: Recruitment into current ME/CFS research studies
  5. CRG
    Post

    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    I guess we'll know more if we get sight of the Agreement. From the September 1st media release and the NICE strategy statement:...
    Post by: CRG, Jan 6, 2022 in forum: Other health news and research
  6. CRG
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Indeed - which comes close to 'diagnosis by Tweet'. Resia Pretorius is part of a Health start up...
    Post by: CRG, Jan 6, 2022 in forum: Blood (e.g. coagulation, cell stiffness)
  7. CRG
    Post

    Closed Uni of Edinburgh: Irritable bowel syndrome (IBS), chronic fatigue syndrome (CFS) and fibromyalgia in those aged 45 and older – the impact of emotions

    And today's word is: Alexithymia - "a personality trait characterized by the subclinical inability to identify and describe emotions experienced...
    Post by: CRG, Jan 5, 2022 in forum: Recruitment into current ME/CFS research studies
  8. CRG
    Post

    Australia: RACGP: GET for CFS

    This a section is from an online handbook: https://www.racgp.org.au/clinical-resources/clinical-guidelines/handi "The Handbook of Non-Drug...
    Post by: CRG, Jan 3, 2022 in forum: Other guidelines
  9. CRG
    Thread

    Health Psychology and Behavioral Medicine: Developing an open science ‘mindset’, 2021, Hagger

    Developing an open science ‘mindset’ Martin S. Hagger ABSTRACT Identification of widespread biases present in reported research findings in many...
    Thread by: CRG, Jan 3, 2022, 0 replies, in forum: Research methodology news and research
  10. CRG
    Post

    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    Unless there is some exclusion such as "commercial interest" then the dealings between a public body and a non public partner are subject to FOIA...
    Post by: CRG, Jan 2, 2022 in forum: Other health news and research
  11. CRG
    Post

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    The methodological problems go deeper than mere recruitment, it’s not clear at all what the authors are seeking to do. There is no stated study...
    Post by: CRG, Jan 1, 2022 in forum: ME/CFS research
  12. CRG
    Post

    An Association of Pathogens and Biofilms with Alzheimer’s Disease, 2021

    https://pubmed.ncbi.nlm.nih.gov/34585987/ "More than 75 species/species-level phylotypes belonging to the genus Treponema inhabit the human oral...
    Post by: CRG, Dec 31, 2021 in forum: Other health news and research
  13. CRG
    Post

    Open Effectiveness of Acceptance Commitment Therapy or Micro Breaks in Patients With Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis

    European ME Alliance Website:http://www.euro-me.org/ "The Alliance now has representatives from Belgium, Croatia, Denmark, Finland, France,...
    Post by: CRG, Dec 30, 2021 in forum: Recruitment into current ME/CFS research studies
  14. CRG
    Post

    Open Effectiveness of Acceptance Commitment Therapy or Micro Breaks in Patients With Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis

    Or indeed wholly accurate if an "R" is added to NIH to indicate the UK National Institute of Health Research which is institutionally wedded to...
    Post by: CRG, Dec 30, 2021 in forum: Recruitment into current ME/CFS research studies
  15. CRG
    Post

    Open Effectiveness of Acceptance Commitment Therapy or Micro Breaks in Patients With Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis

    I might be mistaking your direction of argument but if you mean the current study - then there's no indication it is funded by the NIH. The...
    Post by: CRG, Dec 29, 2021 in forum: Recruitment into current ME/CFS research studies
  16. CRG
    Post

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    V.long reply posted here https://www.s4me.info/threads/deconditioning-%E2%80%93-relevance-and-irrelevance.24028/ as too off topic for this thread....
    Post by: CRG, Dec 29, 2021 in forum: ME/CFS research
  17. CRG
    Post

    Hair cortisol levels in women with medically unexplained symptoms (2021) Fischer et al

    Full article is here: https://www.sciencedirect.com/science/article/pii/S0022395621007469
    Post by: CRG, Dec 28, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. CRG
    Post

    ME/CFS services in the United Kingdom

    https://www.oxfordcbt.co.uk/our-fees/ Therapists Adult Assessment Child Assessment + Report...
    Post by: CRG, Dec 26, 2021 in forum: UK clinics and doctors
  19. CRG
    Post

    United Kingdom: Optimum Health Clinic (Alex Howard)

    Not a coincidence . And shame on Miranda Hart for lending her name to this trash. Author details on the book page:...
    Post by: CRG, Dec 26, 2021 in forum: UK clinics and doctors
  20. CRG
    Post

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    I'm unclear as to how the COVID patients were selected or that selection bias has been avoided. By definition those attending the Stichting...
    Post by: CRG, Dec 26, 2021 in forum: ME/CFS research
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