There seems to be two defining issues: data protection and inclusion/vetting. Data Protection: The UK General Data...
It's a matter of how it's done. If DfME have good journalistic contacts, there's no harm in them saying "look at this Parliament event, shame it...
The BBC's remit doesn't include having to cover "everything" - anyone wanting to complain on that basis will need to get to grips with the...
With Parliament based events it's always a matter of luck whether it's a quiet political newsday and the event therefore get lots of attention...
Other than The Times I can't see any news org report on Rethinking ME listed in the top 20 results from Google or Bing. There are other things...
I think the phrase "banged to rights" applies and that MEA, AfME and ForwardME should all be encouraged to make complaints to the SMCs Trustees...
The Rethinking ME report is an excellent piece of work, which together with all the background effort to tie in the Health Secretary, NICE and...
Any rules based system that isn't properly policed will always impact most heavily on the most vulnerable but we have see this in the context of...
Table 1 starts with the unquestioned equation ME/CFS = Neurasthenia, an issue relevant to this current thread:...
The neurasthenia conflation still alive:...
I'm guessing young lawyers would like a clear line of argument as to why disease x may or may not be considered, or to previously have been...
It isn't in DSM 5 ! At least not in the recently published DSM -5 TR - list of codes here: DSM-5 Diagnostic Codes Edit for clarity
I am not a lawyer but: It's important to distinguish between the actions of the Trustees - who in Law are "the Charity" - and the actions of...
A complaint to the Charity Commission (CC) has to be tightly matched to both Charity Law and to CC guidance, and excepting where there is gross...
Maybe a breach of BBC editorial guidelines: Editorial Guidelines 1.3 The public interest "The BBC’s Mission [4] specifies that we must ‘act in...
None of the cut off scores allows separation of cognitive disability from overall physical functioning. It leaves the possibility for someone to...
If you want to go down the RCP rabbit hole - there's this: https://rcpwatch.wordpress.com/ - though I'd suggest it's best avoided. These are...
In terms of the 'my sister has it' - this may be true and I'd counsel caution about dissing a possible PwME who's not sought a public role in any...
So the CEO of a Registered Charity has written a book in which she compares, by implication, patient advocacy with the Holocaust ? Still we are...
The role of EDMs has changed over time and there are calls for EDMs to be reformed or got rid of, certainly there are MPs who refuse to sign any...
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