Personally I still think it's off-topic: every member of AfME could be a volunteer and it wouldn't magically validate their approach to PACE. And...
Speculative but very interesting (even if it reminds me of the Dynamics & Control module I did years back, *shudder*). I seem to recall another...
As somebody whose spouse works in the charity sector I'm going to say I hate the 'Aha! You get paid!' gotcha argument applied to charities....
None taken. I envisaged a statement along the lines you sometimes see with alternative therapy: 'whilst some people report homeopathy made them...
Firstly, thank you for engaging. It is welcome, even if we may disagree about some things. And despite some of the criticism (including from me...
There does seem to be increasing evidence that would support two-day CPET as demonstrating a difference in ME/CFS patients to healthy controls....
I think they're arguing that CBT+meds is better than meds. Looking at the results, the study suggests that's the case but the effect is not...
I'm generally a deep believer in things being cock-up rather than conspiracy*. Despite being more aligned politically to the Grauniad than the...
Full paper (open access) here: http://stm.sciencemag.org/content/10/434/eaan2306 Journal summary: Autoimmune initiation by bacterial antigens...
I cannot like that statement highly enough. I see precisely zero shame in mental illness and would be thrilled if there was good, objective...
Same here: vertigo was the first symptom and very sudden at that. One moment I was fine and then suddenly it was as if the ground beneath my feet...
Link doesn't seem to work for me? I get: Comprehensive Nutritional and Dietary Intervention for Autism Spectrum Disorder-A Randomized,...
Well, seeing this on the front page of the BBC when I logged in to my PC this morning was a nice surprise. Congrats all.
I wonder how the Center for Disease Control feel about effectively being described as hiding evidence that CBT/GET works because of 'sustained...
Worth noting they used the 'CBO criteria' which is based on Fukuda 'with the exclusion criteria of Reeves' which does at least seem to rule out...
It really, really is. I'd like to pretend that means I'll stop using it but sadly I'm like one those cocaine-addicted lab rats, seeking my next...
Absolutely - if you have other medical issues that accompany your ME/CFS then you 100% should get the proper treatment for that. And it is very...
ETA: however, we should also cut each other some slack. Most of us are trying to achieve the same thing even if we have different ways of going...
This is the crux of the issue. Yes, we're desperate for clinical trials because we want a cure as soon as possible - but in reality, we still...
Thanks. I still tend to think of myself as mild because I'm (with adaptions) still in full-time work and I'm sure I read somewhere that 75% of...
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