Thank you for posting this @Inara and I bookmarked it as well. The science is way above my head and I won't even pretend that I can understand...
I had not seen that article before and thank you for posting it @Kalliope!
Wow, @Kellyj80503 Thank you so much for finding this info and alerting me! I have not posted on S4ME for several months due to family emergency...
I tried it in early 2016 and it was absolutely horrible. It dropped my BP even lower than 80/50, gave me a severe headache, and lowered my...
Thank you for the update @Binkie4 and you are a very good advocate for yourself. I'm glad it went as well as possible and that you are home now.
I'm glad you are looking into this further and I hope your doctors are being thorough now and taking it seriously. I agree that a "CFS" diagnosis...
@TrixieStix You are very brave to share those photos and I believe they will help someone else down the line. Do you have a definitive diagnosis...
@Josie, I got your PM and had two appts today but will hopefully be able to reply this evening. And welcome to this new board and look forward to...
I was going to attempt the 2-day CPET test in 2013 (prior to finding the ME/CFS specialist in mid 2014 who is now my main doctor) but all of my...
Glad I could make you laugh :rofl::woot::laugh:
@Alvin I think we might agree but are just using different words. To me adjunct techniques that can be therapeutic (not necessarily for me but in...
I didn't mean actual medications vs. people trying adjunct therapies as a coping tool (b/c some percent of people will benefit from it). If you...
I agree and I don't have any problem with people trying anything they want (if they are an adult and truly give informed consent) but I wish many...
I don't know what tests are permitted by the NHS (and @Justy will be able to advise on that part) but some standard tests done by my main doc and...
Someone from the other board (who is new and I do not know well) recently sent me a PM re: MCAS and was asking really good questions and I am...
You didn't upset me and what I said was not directed toward you (nor to any specific person). I was just surprised to find this new thread b/c I...
I am concerned that quotes are taken from Whitney from another board and are now in a thread on S4ME that is not a Member's Only thread. I may be...
Why am I not surprised? ;):banghead:
This is a great question and even though I have been diagnosed with a calcium channelopathy, I do not know the answer and do not think that any...
@Justy, is it possibly to request your old medical records to see what the actual ANA titer and pattern were? In my case, once we figured out...
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