Does anyone know what happened to this? I remember the observatory being discussed a lot, did it become Decode? Establish CFS/ME Observatory for...
I’m so glad there are people out there that are better/smarter than me. @cassava7 thank you so much for all you did here trying to bring this to...
This is an unofficial chat forum, not an official forum representing patients views.
Thanks for this. Anyone know when will the minutes will be published?
Self promotion always wins out with this disease. Its not and never is about patients sadly.
And trying to dig into ACE’s [MEDIA]
Eyeroll “Staying ahead of Dr google” in other words they realise that their model is useless and patients don’t need an intermediary because we...
Elaine Wilkins says in various places she had parasites and thyroid issues so no, she didn’t have ME.
This is really a pyramid scheme to recruit practitioners to retain patients through a monthly payment scheme and sell training courses. When...
[SPOILER]
[SPOILER] It’s been taken down now but -
Did Caroline Lucas ever reply to your last letter Peter?
Yeah - dodgy. Stop promoting them and talking about them, and they may go away. We have already had action for me and the me association promote...
Clever way to start promoting yourself without promoting yourself. Start interviewing researchers and charity trustees that have recovered and get...
That is a great letter! Thanks to everyone who contributed towards putting it together.
Also daytime dosing works fine if it interferes with your sleep.
I’ve noticed it seems to work best for those who start really low and keep to a really low dose rather than go in at 4.5mg or work up to that....
I have emailed ServiceSurvey@nbt.nhs.uk and asked them to remove my answer and confirm that they have done so. They have done this. I have had an...
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