I appreciate you recognize that for those of us sick longer this has had a deep impact. 30 years last August... I have good reason to be fed up...
Thank you for replying. It sounds like you use ME/CFS as ME & CFS. I would agree that is a viable approach as it does indicate there is a...
I hear what you are saying and realize your perspective is from the UK. Part of what I was trying to explain in my comment is that while it may...
This is an important discussion to have but there are some points I think need to be taken into account. 1. ME/CFS has three different meanings...
I'm still struggling to understand your position about the ICC when so many researchers are using it. All of these studies listed below used...
We do see PEM referenced in other disorders - including Fibromyalgia (fibro crash) as well as cancer related fatigue. See chart here:...
A series of posts have been moved here from the Concerns about CCI thread. Just to clarify - these are all the people you are saying are fringe...
What I'm trying to say is the immune dysfunction IS necessary to the process for diagnosis of ME. I absolutely agree that it is NOT necessary...
And yet this is what the experts included in the ICC: "Myalgic encephalomyelitis (ME), also referred to in the literature as chronic fatigue...
A bit more clarification about the patient experience will hopefully clarify for you why it is HIGHLY relevant that the neurological,...
Maybe I'm not understanding what you are saying. So I will reclarify. In the US - we go to a doctor.... they are required to use a diagnostic...
This may be a case of what happens in the UK that absolutely does not equate to what happens in the US. Diagnostic criteria for ME is G93.3 In...
I agree this isn't medical education but I think it is important that patients have a basic grasp of the criteria they are attempting to...
Right. Good to understand though that disability under social security relies on actual ability to work and not the diagnosis. Previously the...
I would argue they have NOT accepted this. The experience of many patients with their work place disability as well as the stance at major...
My personal opinion (based on 30 years of being ill with sudden onset ME) is that the International Consensus Primer is a fairly comprehensive...
A unified front about what criteria is best for research into ME should already exist. I think we can all agree that Fukuda (just like Oxford)...
THANK you so much for the transcript! And I agree this was a quality presentation. Science not silence... great message. That first quote...
I'm concerned that answering your question is actually stepping into a minefield. So let me approach the answer this way. I will respect that...
Dr. Montoya treatment sheet: Includes information about dangers of exercise, lab testing and antivirals. From the paper: “Imagine that every time...
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