This is an important discussion which exposes a great deal of what I see problematic in the ME community. We need the narratives about ME to...
I haven't compared for accuracy, but it is definitely understandable. I think that's one of the best visuals I've seen to help understand the...
I think you make an excellent point. Any diagnosis must go through a process of elimination. Just fitting a diagnosis is just the first step....
I hope this will be available for viewing after. The information he shared at the OMF symposium was informative. The information about the...
I hope you are right. I am in the US and the distinct definition for ME has been excluded repeatedly by our CDC, the rumblings sound like NICE is...
In any disease the description of the disease is the basis for all that takes place. We know the description of ME (as per Ramsay) was corrupted...
All things in moderation. This article peaked my interest pointing out that for those who are taking high levels of probiotics they may be...
For those who aren't familiar with PCR testing (I needed a refresher - googled emedicinehealth) "PCR amplification is only part of the...
This is a fascinating discovery. I would, of course, be asking a lot of questions. Were they looking at antibodies that require a "normal"...
I am speaking from the US perspective - See my other response regarding the behavior modification treatments promoted by the US CDC in my other...
This thread is specifically about the US has proposed giving ME, CFS, and SEID three different ICD codes. So this isn't my argument about "what...
I wasn't specifically referring to CBT and GET. Sorry that was not clear. I was referring to treatments being based on patients changing their...
A biomarker can't be found if vague and imprecise case definitions are used. Experts who had seen thousands of patients and had a good handle on...
I am aware there are experts in this group. Which is why I joined in the first place. I disagree that CBT/GET has nothing to do with case...
Thank you for clarifying. As the name of this group is Science for ME. (Not Science for ME and CFS and SEID and PVFS) I understood the focus of...
Please note I am referring to ME and CFS from the perspective of being in the US. I believe patients should educate themselves about the issues...
And now I fully understand the crux of this miscommunication if you are sure ME does not include immune abnormalities. I have immune...
Do you have details about any of them? Do any of them base their education on the IC Primer? Historically what we have seen leaves those of us...
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