Can you clarify for us which of these listed below have failed to replicate? Is there an assurance you can give that the people who these did...
You are correct. This issue of the ICD code is specific to the United States. Therefore the concerns are specifically for how the US doctors...
I believe some of what you are looking for will be found in the post I just did that includes a number of studies involving the brain in ME patients.
Thank you for asking for clarification. Cognition issues are definitely covered. But the outcome of that information lands us right back in...
For me it comes down to how patients are going to be treated depending on the diagnosis they are given. This may be a bit round about way of...
The immune issues in ME go far beyond the sore throat mentioned in SEID. There are multiple studies showing B cell, Th1 Th2, NK cell function...
https://www.meadvocacy.org/seid_classification_usurping_me_must_be_stopped Some information about submitting comments in this blog.
This proposal operationalizes SEID name and criteria in a way that will affect patients the same way Fukuda did. I realize many think this is...
I agree. That was a deeply upsetting statement as it clearly gives those outside of the community the wrong understanding. There is NOTHING...
I was unaware that they changed something after it was signed. That makes me very uncomfortable. Does anyone have a "before and after" version...
Asking for proper treatments that have evidence based studies always leads to what disease are we talking about? If it is CFS that is diagnosed...
Patient selection for this study? Does anyone have access to see how they chose those 5 patients?
Would probably be important to verify which of those in the study have the MTHFR gene mutation if this is affected by folate availability. If it...
I've heard two reasons. One is that not all the experts that signed had enough experience/confidence yet in the ICC so they chose the CCC to get...
I couldn't agree more. It is becoming apparent this is going to be the future battle we face as long as the two diseases ME and CFS are mixed...
Not sure where you are located but in the US insurance won't cover tests that aren't attached to the code used. Currently the codes used in the...
Yes... you are right... that did come before Fukuda. But Fukuda being adopted is what led to there being an institutional bias in the US against...
I am in the US. So, yes, you are right we have expert doctors here (Montoya, Klimas, Enlander, etc.) who are doing treatments that are likely not...
When discussing any criteria, focus has been on getting diagnosed or selecting patients for research. What is repeatedly ignored is what is the...
Separate names with a comma.
