Please, show me where they say that directly on their website (not on someone’s blog)
Correct. The actometer counted steps while i was on my mobility scooter, from the bumps on the sidewalks.
From what i remember they felt that patients with ME had high cortisol. It is not my case, and i know of others who have the same presentation. So...
Not sure what DBPc stands for. But a good trial would have enough patients that would be subgrouped (ex: gut issues, MCAs issues, muscles...
Indeed we are in desperate need for clinical trials to find out effectiveness, adverse events and how it stands up against a placebo in our...
Agreed. I think the reduction in social services, in the UK is alarming. Folks are having a very tough time accessing disability payments, can no...
Good point @Alvin and i must add that rheumatology in Canada seemingly does not want to care for fibromyalgia and from personal experience, ME is...
Exerpt: ME is not a specific disease or condition and is generally a ‘diagnosis of exclusion’ – one given when no definitive disease can be...
Lipkin said there is a paper in the work, that he couldn’t discuss its content otherwise he wouldn’t be able to publish it.
Reminder that this telebriefing is today! Check out your time zone.
Too bad it’s only for right handed people :(
Welcome @Gary Burgess and thank you for sharing your story on BBC radio. You are helping thousands in feeling less lonely and less stigmatized.
This one is a shocker. What a huge loss. i wonder whether he will remain in the field or not. https://solvecfs.org/dr-zaher-nahle-leaves-smci/...
Hi @Pen2 my extended health insurance covered my scooter at 100% (I am in Canada)- so I could pick the one that suited me best. i am allowed a new...
They keep on changing the terminology to make it acceptable for patients. Hysterical became psychosomatic, then became ‘all in your head’ then...
Without going too far off-topic, I am sorry @ukxmrv that you had to go through a very difficult chemo protocol. FEC is on of the tough one, and...
If there is a transcript i would love to have a copy. I am unable to watch due to cognitive issues.
I was a chemo nurse administering clinical trials. In blinded trials, patients would receive pre-meds as per protocol because remember, even the...
It may have to do with your blood glucose levels in the same ways that diabetics feel if they have a high carb meal. You may be able to process...
Such a sad story, and a despicable message on twitter from Vogt. There are no words.
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