This wording seems to suggest that physiotherapy and clinical psychology are the people who haven't been badly trained. How about: I might even...
This is fascinating! Thanks so much for writing it, @Jonathan Edwards, and for staying with us and listening and working with us all these years,...
You do yourself a great injustice there! You write extremely clearly. :) Thanks for the update and further thoughts.
Thanks, @Jonathan Edwards. I'm wondering what you think of what @shak8 summarises above from the TWiV podcast: And also from another thread:...
Could that manifest itself as something ME-like? (Or Long-Covid-like?) As opposed to a neurological area?
Is there anywhere an up-to-date summary of where we're at with vaccination and how to think about it? I'd like to have an informed discussion with...
What sort of timeframe would you expect?
I also have migraines on what appears to be normally roughly a weekly a cycle (three days on, some days off), but have managed to mitigate it...
How are trials like this even still being allowed? :banghead:
Superb talk, what an amazing guy. And what a great example he sets by wearing a mask!
Thanks for doing this, @Jonathan Edwards , and for asking for opinions and ideas beforehand. Great to have patients represented in this way.
I tried out the Powerbreathe and worked up through the lowest levels to find the point at which the training would essentially begin. Once I'd got...
I hadn't realised that! I'd thought that the epidemics of ME were simply when some bug was prevalent enough to cause mass ME, just as Covid is...
I hope so, but I don't see in the media any recognition at all that we are in an ongoing Covid crisis with now up to 2m people in the UK with Long...
No one seems to be talking any more about how to turn off the tap of new Covid-caused cases of ME. As far as I'm concerned, the pandemic is...
Interesting question! Bear in mind that some of us are remembering decades back, though. I remember an initial feeling of being under the weather...
@forestglip This is really interesting about the body-position tracker. I think it would be huge to have an objective measure of how long we can...
The phrasing I use, if conversation with someone who doesn't know my situation heads into an area that is going to get weird without some sort of...
I don't know that people realise when they're following a butyrate-producing diet, so I think it would be hard to get that kind of observational...
Chris says here that they don't today have a result from DecodeME and don't have a date for when they do but that they're going as fast as they...
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