Thanks, everyone, for all the suggestions so far! Even if they're not ideal for me, they will be very helpful for other people. Alas, for me,...
I don't even know what an iPod is so I'm really going to need that 20-year old (or even 7-year old, they probably know all this tech stuff). I am...
TBH, I don't really want to leave the laptop running overnight.
That's a good idea about laptops but there's no room for mine in the bedroom and it's quite awkward to move it from where it lives. That might...
I've also got an alarm clock with birdsong on it but it's quite clearly artificial and just repeats over and over and then stops after a while....
I feel like death when I wake up and never know what time it is (too short-sighted to read my alarm clock, and my bedroom shutters keep my bedroom...
@josepdelafuente, this may be too late for you now but I got the latest issue of the MEA's magazine and in it, Dr Shepherd refers to a To Whom It...
This seems a pretty amazing approach...
Thanks, Jo. Does that help us move forward in any way to understanding mechanism, or thinking about treatments? Or prevention, when people have...
My entire, decades-long experience of ME has been that if I get an additional viral infection, and it's bad, it can significantly worsen my...
Merged thread Just wondering... The Dubbo study looked prospectively at people who caught EBV, Q fever and Ross River virus, and found that...
Regardless of the specifics of this particular study, is this an approach that would be useful for ME?
I asked a gastroenterologist whether micro-encapsulated butyrate was worth taking and he didn't think there was evidence for its efficacy. I don't...
@Andy, has DecodeME contacted the ME/CFS clinics and asked for their help to recruit? As you point out, DecodeME has a small team but according to...
Great job, @ringding! :) I think this raises the question of what we should ask these clinics to do to recruit for DecodeME. Give each patient a...
Thanks, Jo. Do you think that this is something that DecodeME could approach them with directly? Or something that should come from one of our own...
Do you have any thoughts about who should approach these people/bodies, and how? Why would Versus Arthritis tell their members about this when...
You're right there, it's very stabby into a bit of yourself with loads of nerve endings and it's often very hard to get enough blood out for the job.
I tried it some years ago and it had zero effect on me, either good or bad.
Great minds, @Kalliope !
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