That's good to see, but having attended no end of hybrid meetings via Zoom and found that those of us online have been treated like children of a...
But it it's not on their radar, how are they managing to hold on to the belief that it's at least partly psychosomatic when faced with patients...
Wow, that is a depressing result. ( It would be interesting to interview doctors who have developed ME-style Long Covid to really go into some...
Might be worth turning up just to point out that it's an invalid meeting, though, and then leave...
I'm so sorry that PwME are encountering these attitudes so often! The question is, though, is there any survey data?
I'm sorry you've had such a horrible experience! But I'm not sure that most of us would know. For the most part, I have no clue what my doctors...
Any thoughts about taking this forward, @Jonathan Edwards? Could people here help?
I'm not sure that would reflect the percentage of doctors who hold to that model. I find it weird that this is something that impacts the lives of...
Ooh, thanks, @Sean. Looks good.
We know that the various 'it's not a disease' models (BPS, MUS, predictive coding, etc. etc. etc.) of ME/CFS have been prevalent but do we know...
Thanks - I wish the UK was this sensible!
Can any member force an item to be covered under AOB? I have no clue about the rules that govern meetings.
This ONS page shows some Covid test result graphs over the course of the past year, based on what seems like fairly scrappy surveillance. The...
Is there any precedent of a medical charity that has gone rogue being successfully tackled by patients? I know we're in a BPS hellscape but we...
Thanks, Kitty. My concern is that even though decisions ought to be void in such a case, I'm not sure that anyone outside the same group of people...
Without hyperventilating. Just thinking. Since the mind is so all-powerful...
If you're correct, what would be the consequences if the MEA went ahead with its AGM, if the MEA choose to ignore the issue? Would PwME or others...
I'm still shielding from Covid as best I can but need to book a medical appointment for some treatment within the next six months during which...
I would like to see an on-the-spot demonstration of this idea that people can create their own symptoms with their minds. I'd like to see a...
Is there a useful distinction to be made between things and processes? It sounds as though with RA, you discovered a process that involved...
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