A blood test has shown that I'm deficient in B12. The possible cause is being investigated but meanwhile, my doctor wants me to go on high-dose...
Could DecodeME get PwME from this new UK health study with 3 million participants?
Is this the sort of avenue that DecodeME could pursue more generally? Is Chris Ponting presenting on DecodeME at any conferences?
I seem to have totally failed to express my idea! :) What I mean is, that DecodeME could ask doctors to directly approach those particular...
Not really this either! :) I mean, if you're a doctor, asking your ME patients face to face or down the phone in a consultation.
I was thinking more directly, given that many PwME won't be able to go to a GP surgery and, even if they did, could easily overlook a poster in...
@Jonathan Edwards - is there any way to mobilise GPs and secondary care doctor to alert patients to DecodeME?
Several elephants in the Long Covid waiting room.
A friend of mine with ME who isn't on the forum is having a procedure that will involve sedation and IV pain relief. We had a recent discussion...
I had to have a general anaesthetic in my 30s. At that point, I too was bedbound, and, looking back, had POTS. I looked to the MEA literature for...
Do they have a contact form? Might be worth telling them.
Oh! Answered my own question: https://www.metabolics.com/vitamin-b12-cyanocobalamin.html This is just water plus cyanocobalamin. Brilliant!
merged thread Cyanocobalin 1000mcg without nasty stuff? My doctor wants me to be on this but can anyone recommend one I can buy in the UK that...
I think DecodeME is fantastic. But I understand that some might feel frustrated about some aspects of it. But I hope that we can all agree that we...
Me too. I think the time to really rub people's faces in how badly we've been treated will be when we've got 25k viable participants in five...
I must admit that I didn't find it so - my big problem was that it wanted you to compare your 'treatment' before and after the pandemic and, of...
Done - a bit tricky to answer some of the questions because the questionnaire assumes that all chronic diseases get treatment (if only!).
Really superb job by Chris Ponting there - I think the 'yuppie flu' comment was on a Radio Scotland (?) interview I heard yesterday, that included...
Especially impressive given the scale of what's dominating UK news right now! Well done indeed to the team.
I'm still waiting for Star Trek medicine! And we're always being told that medical advances are at least five years away. So, looking back over...
Separate names with a comma.
