I haven't been going anywhere where people are, but in case I every do, I've just ordered a cotton mask online to try, and I'll order more if I...
Well done, @Andy! Great job there. I hope it hasn't tired you out too much.
I registered for the above and got this email in reply: @Andy, how can people who aren't registered with FB submit a question? Do I understand...
Details now posted here: [MEDIA]
I have a piece of card taped over my laptop camera so that I'm never accidentally visible! :)
@Andy, is it possible to set things up so that, by default, people's videos and mics are off? Otherwise, people watching in their jimjams might...
Sorry - Miranda retweeted it but I can't see how to pick that up.
I hadn't realised - Miranda Hart (2.3m followers!) tweeted about DecodeME last week: [MEDIA] Edit - sorry, she retweeted this but I don't know...
As a leaflet, it's designed to be printed onto paper, so I think it's fair enough. But I wonder if there needs to be something designed for phones?
Just curious - why is that bad?
I don't think *any* patients in the UK will have been diagnosed by the CCC or IOM criteria. I think the NHS only uses the NICE criteria. I'm...
Considering that the project hasn't had its formal launch yet - just its funding announcement - I think it's doing incredibly well. I feel...
Great that we're seeing new coverage even three days later in a major newspaper. I hope it drums up some more registrations!
But the writer strongly implies that those who object to GET are doing so solely because they haven't improved with it - rather than that those...
What you're doing is great, but something needs doing at a national level to catch all the new patients.
People who don't have ME/CFS will be screened out at the questionnaire stage, so it's not a problem if they do sign up. In order to reach as many...
Excellent letters. Thanks, @Robert 1973 .
Is anyone able to paste screenshots of the letters here?
Can anyone able to post please post a link to DecodeME and ask patients to sign up and everyone else to tell every patient they know about the...
I'd suggest posting a link to that video interview with Dr Nina Muirhead. I think that will kill that sort of argument stone dead.
Separate names with a comma.
