Do we know what #ThereforME were requesting in terms of action?
Thanks, @Kalliope - I wonder if it's worth editing your post to make it clear that that's just the opening para of his statement?
How about the mysterious 'something in the blood'?
I think that if deep relaxation produced immediate remission, we'd know about it - lots of PwME have tried deep relaxation. Even sleep, which...
Occasionally, I have to gently explain to well-meaning friends who only see me at my brief, fast-burning best why I wouldn't feel better if I...
I've been doing that but have realised that I can't hold my breath for long enough! If I think about for how long I can smell someone's perfume or...
That's an amazing story! Immediate full remission of symptoms like that must surely be a gigantic clue to the mechanism of ME/CFS. And so must the...
Oh dear:
Very interesting! Is there any way of determining whether that is the case? For example, would the results of DecodeME help? Is there a restricted...
From another thread: 5/5/24, Long Covid Podcast: Dr. Wes Ely - What is Immuno-modulation & how could it help with Long Covid? “what we learned...
Now that you mention it, I'm also surprised that I didn't include that question! I also ask family to do a lateral flow test on the same day...
@Jonathan Edwards - this is from another thread: This reminds me that before vaccines were available for Covid, there were a lot of reports that...
Thanks very much indeed to everyone who has replied so far. I started this thread to find out whether I was largely alone in still shielding, and...
Would you like to explain a bit about this time window? Do you mean that there might only be a 5-10 year time window during which someone could...
Pretty much word for word, this was me for 18 months after I got Covid pre-vaccine - then things improved a bit and now it seems to be happening...
Thanks, @forestglip. I've read about exposure to various things being good for children but I wonder if it's different for adults, given that our...
I came across this idea a few months ago - that continued low-level exposure to viruses helps to keep our immune systems trained, even as adults....
Same here, and the burden of it on researchers and reviewers that you describe is in no-one's interests if it's not actually adding anything. In...
I was ranting on another thread about how crazy it is to involve local patients in trying to develop local ME/CFS services, when most patients...
Peter Rowe in his new book about orthostatic intolerance says, 'Another time-honored recommendation is to elevate the head of the bed slightly by...
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