Wow... Thank you... Next question, of course, is how we get these done?
I'd always thought of the bleurrgh as a separate thing on its own, with nausea, pain, etc. separately identifiable - as a collection of individual...
But surely if you have schizophrenia, you can't help thinking wrong. The accusation (and it feels like one) levelled at PwME is that we have false...
This is very interesting (and surprising, to a non-medic). But do you have any specific ME/CFS symptoms in mind? I'm trying to think of which...
Very interesting on Ramsay. Until you started talking about him recently, I had no idea about any of these issues with his observations at the...
@Jonathan Edwards - I woke up thinking about this! 'Firstly, people with ME/CFS have persistent unpleasant and disabling symptoms, varied and...
Great stuff! Thanks for all your hard work on this, @Jonathan Edwards. I have a mix of nitpicking stuff and more substantive comments. Page 1...
Reading the accounts here, I think you're right. It's just unbelievable how bad this has got for PwME. Literally in every medical consultation...
The failure of peer review is scary.
Can we do anything here on S4ME about providing starting observations - for example, as with your digging on the experience of lying flat, and the...
Thanks for posting, @Mij - there's been a lot of interest in nasal vaccines that would deliver presumably superior mucosal protection, so knowing...
Yes, definitely. When I first got ill but was still about to be out and about and work an hour or two a day - i.e. mild/moderate ME - I caught a...
I don't know about postural muscles but I don't recall whether I was able to relax fully while being jolted about. I would expect that I would...
Wouldn't there be a risk of a whole lot of post-hockery and over-analysis requiring wiping out findings by correction for multiple analysis?...
Thanks so much, @dave30th and @Chris Ponting, for this new interview. @Chris Ponting, you said that ME/CFS is 'about 10 to 20 years behind every...
:) But seriously, this is exactly the sort of thing that would need to be done by patients at home. We could just be given monitors and left...
This seems like a great idea. How can we make it happen?
Keeps it real, though! :)
I find the physical effects of strong emotion very different from PEM. I try to keep my emotions steady because the effects are so unpleasant, but...
I think that visiting would be important. One of the main things I want doctors to learn is attitude - of the kind that doesn't result in patients...
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