Presumably ethical approval is distinct from whether there are methodological issues using pre-acquired data from a service evaluation in a...
I'm not talking about pwME, but I would not be surprised if there are people whose only problem is deconditioning, but very severe, then there may...
I'm not sure. Perhaps @PhysiosforME can answer this one? If someone's sole problem genuinely is severe deconditioning, possibly left over from...
Your group really is amazing @PhysiosforME, in the best every way. Huge thanks, huge congratulations, and keep up the tremendous work. You really...
Psychiatrist 1: How do you empathise? Psychiatrist 2: I'm told that if you need to ask there's no point asking. Psychiatrist 1: So how do you...
At first I thought it looked possibly enlightened with Not Yet Explained Symptoms, until I then realised: [ATTACH] So I conclude they are likely...
It should be incomprehensible shouldn't it. But it's what seems to happen when a certain cabal of psychiatrists presume expertise way beyond...
Yes, badly worded. Presumably it should say "Apart from ME/CFS, you must NOT have any other medical condition that affects memory or attention"
Before 2016 when I joined PR, my wife and I lived in blissful ignorance of all the controversy surrounding ME/CFS, and we still thought the sun...
Please don't assume you don't experience PEM; it is very easy to get the impression that only the more severe symptoms equate to PEM. But I...
Not one she has given credence to I would imagine, as that is the default usually for pwME.
Although I'm far from a shining good example, if some of the risk factors for severity can be reduced by lifestyle choices then it is valid to...
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Don't seem to. I think they missed a bit of a trick here, because it is the expected norm these days, out of politeness if nothing else, to send a...
Very well put.
Me too, very much so.
I also read that in order to achieve the 20,000 suitable participants they need, they are hoping for around 40,000 applicants to choose from.
Yes, the individual data from the very few objective outcomes would need to be looked at. A very small % may have improved, same as maybe a very...
I suspect there will be a small minority of long time, severely affected sufferers who will inevitably therefore have also become badly...
I would agree with accurately diagnosed. But Helen Nicholls was diagnosed in 2001, so how confident can we be in the accuracy of a diagnosis at...
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