@dave30th: It feels like there is ample material for a PACE (etc.?) jokes blog post. Something the scientific community could draw on for...
I guess it depends what the notion is that gets put across when talking of boom and bust. I suppose, thinking about my wife, if she was not so...
:D;)
[my bold] How very strange. So because all disorders impact functionality, then functionality cannot be objective and cannot be measured ... ?...
[ATTACH] The above cuts to the chase of why BPS-flavoured psychiatrists cannot get their heads around the notion of objective outcomes. It's just...
And also the use of "boom and bust" suggests that the optimal operational mode for a pwME is no ups and downs at all, but a graph showing...
:thumbup:
Very much so.
How can I put this as politely as possible ... I wish they'd stop talking out of their collective @rse!
Which again reinforces their misconception of deconditioning I imagine.
Yes, I also would very much like to endorse that view @Hilda Bastian. Your robust engagement here in seeking to get to the truth of things really...
Really good summing up. Yep. If ME/CFS really was a deconditioning problem and pwME's behaviour needed to be changed in order to fix it, then...
Like: I can't get the brakes fixed until Monday so it must be OK to drive the car today.
Presumably by this you meant to say "running an unblinded trial". As @Jonathan Edwards has noted before, if the trial is properly blinded then...
Yes, it was this post:...
Yes. Another possible loophole in PACE occurred to me, regarding PEM. Without round the clock activity monitoring, PACE almost certainly never...
Absolutely. As I think @Jonathan Edwards has said in the past, subjective outcomes are fine even in open label trials provided objective outcomes...
Personally I think it most likely because the key players are supremely adept at cultivating high level influential relationships across a wide...
Ah. So the buck stops with the Q.A. department's validation procedures. ETA to clarify: My implication being Cochrane are roughly the equivalent...
[ATTACH] I thought: What! A scientist who queries the meaning of an objective outcome? Then I see: [ATTACH] Just reinforces my sense that many...
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