The draft NICE guideline.
Given the never ending stream of such papers that seem to be emitting from these BPS folk for ME/CFS, presumably there will be ones still in the...
My bold :).
Quite. No point labouring the point too much to them about how many gigantic cans of worms they will be opening if this guideline goes through as...
But do we ever get to honestly hear the counterpart to that, the people who were not helped or were made worse by it, but dismissed as simply not...
Got it, point taken :).
Is there a risk that by pushing too hard for such things before the guideline is formally published and set in stone, then we might provoke more...
Yes, could suggest the BPS crew add the following tag line to all of their papers: "Science is whatever you want it to be".
This is an example of what I was thinking of, though I'm pretty sure he made the same assertion at other times also: [MEDIA]
Yes, it's why one of the PACE authors (Sharpe I think) argued vehemently that it was CFS they studied not ME.
Yes I fully agree with this. Severity levels are a broad brush description, but necessary. For many people and groups it is important to...
Fully agree. Somewhere else in these threads (sorry, lost the plot where) I've said that the guideline should make very clear that whenever it...
To my engineering brain this just feels like common sense. For any one person, each kind of activity (using that word loosely) will have a given...
Not sure if relevant to this guideline, feels like it should be somewhere, maybe in the glossary section for Mild ME/CFS. Often overlooked when...
Has anyone seen any mention of indigestion as a symptom of ME/CFS? I believe it is common, and can be triggered by trivial things.
Absolutely. As I've said before, in something like aircraft safety, the level of evidence required to ground an aircraft because of safety...
In this case they seem to have left their movement ready prepared in its own paper ;).
Exactly. If they really had the integrity they pretend to show now, then they would how spoken out for what is right long before now.
No Sarah it is not unkind, just a question that needed to be asked.
Yet the therapists still push treatments founded on theories they believe are irrelevant. Weird. Let's hope this guideline makes it through in a...
Separate names with a comma.
