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  1. Andy
    Thread

    Open The Long COVID-19 Wearable Device Study, Scripps Translational Science Institute, California

    Study Overview Brief Summary To further characterize Long COVID-19 by collecting data from individuals who already own wearable devices or are...
    Thread by: Andy, Nov 9, 2023, 12 replies, in forum: Recruitment into current ME/CFS research studies
  2. Andy
    Thread

    Open The Living With a Long-Term Condition Study (LTC), King's College London

    Study Overview Brief Summary Psychological distress (anxiety and depression) is common in and experienced differently by people living with...
    Thread by: Andy, Nov 9, 2023, 19 replies, in forum: Recruitment into current ME/CFS research studies
  3. Andy
    Thread

    Open Investigation of Treating Chronic Fatigue Syndrome After COVID With Pharmacotherapy (Pregabalin) or Complex Rehabilitation (POSTCOVID), Poland

    Study Overview Brief Summary This is a single-center, prospective, randomized, double-blind (pharmacotherapy), placebo-controlled, and...
    Thread by: Andy, Nov 9, 2023, 0 replies, in forum: Recruitment into current ME/CFS research studies
  4. Andy
    Post

    Protocol Effectiveness and health benefits of a nutritional, chronobiological and physical exercise primary care intervention in FM and CFS 2023 Carrasco-Quero

    Link to Clinical Trials website for reference, https://clinicaltrials.gov/study/NCT05719493
    Post by: Andy, Nov 9, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Andy
    Thread

    Open Application of Direct Current Transcranial stImulation, Remotely superVised in Chronic fATiguE (ACTIVATE), University of Regensburg, Germany

    Study Overview Brief Summary It is a one-arm open-label interventional study with transcranial direct current stimulation in an remote...
    Thread by: Andy, Nov 9, 2023, 0 replies, in forum: Recruitment into current ME/CFS research studies
  6. Andy
    Thread

    Still to open Discovering Trends in Chronic Fatigue Syndrome Patients' Clinical Study Experiences, Power Life Sciences Inc., California

    Study Overview Brief Summary The study seeks to delve into the firsthand experiences of patients diagnosed with chronic fatigue syndrome who...
    Thread by: Andy, Nov 9, 2023, 11 replies, in forum: Recruitment into current ME/CFS research studies
  7. Andy
    Thread

    Open Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (ME/CFS) Registry and Biobank, COVID-19, SARS-CoV-2 (MECFS-R), Technical University of Munich

    Study Overview Brief Summary Chronic fatigue syndrome (syn. myalgic encephalomyelitis or ME/CFS) is a relatively common, but pathogenetically...
    Thread by: Andy, Nov 9, 2023, 0 replies, in forum: Recruitment into current ME/CFS research studies
  8. Andy
    Thread

    Still to open Exploring Worry in CFS/ME, King's College London

    Study Overview Brief Summary This study will be building on the findings of Kalfas et al 2022 paper exploring the prevalence of generalised...
    Thread by: Andy, Nov 9, 2023, 16 replies, in forum: Recruitment into current ME/CFS research studies
  9. Andy
    Thread

    Still to open Improvement in Physical Function in SF-36 With Vericiguat Compared With Placebo in Participants With Post-COVID-19 Syndrome, Charite Uni, Berlin

    Study Overview Brief Summary The goal of this clinical trial is to evaluate the therapeutic value of an approved drug (Vericiguat) in patients...
    Thread by: Andy, Nov 9, 2023, 0 replies, in forum: Recruitment into current ME/CFS research studies
  10. Andy
    Thread

    Open Munich ME/CFS Cohort Study (MUC-CFS), Technical University of Munich

    Study Overview Brief Summary The Munich cohort study MUC-CFS aims at the characterization and long-term follow-up of myalgic...
    Thread by: Andy, Nov 9, 2023, 0 replies, in forum: Recruitment into current ME/CFS research studies
  11. Andy
    Thread

    Open Hyperbaric High Pressure Oxygen Therapy in Post-COVID Syndrome and ME/CFS, Charite University, Berlin, Germany

    Study Overview Brief Summary The objective of this observational study is to document symptom progression in 60 patients with myalgic...
    Thread by: Andy, Nov 9, 2023, 0 replies, in forum: Recruitment into current ME/CFS research studies
  12. Andy
    Post

    ETUDE: Encompassing Training in fUnctional Disorders across Europe

    I'm surprised that they openly admit this "Their aim is to improve the current symptom-based diagnostic criteria that are insufficiently validated"
    Post by: Andy, Nov 9, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  13. Andy
    Post

    ETUDE: Encompassing Training in fUnctional Disorders across Europe

    Funding page for the project, https://cordis.europa.eu/project/id/956673 "A new era in functional disorders research Functional disorders (FD)...
    Post by: Andy, Nov 9, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  14. Andy
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $15,204 raised, 23% of target, 22 days left https://crowdfund.berkeley.edu/project/40018
    Post by: Andy, Nov 9, 2023 in forum: Fundraising
  15. Andy
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,395 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
    Post by: Andy, Nov 9, 2023 in forum: Petitions
  16. Andy
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,334 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
    Post by: Andy, Nov 7, 2023 in forum: Petitions
  17. Andy
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $12,134 raised, 18% of target, 23 days left https://crowdfund.berkeley.edu/project/40018
    Post by: Andy, Nov 7, 2023 in forum: Fundraising
  18. Andy
    Thread

    Opinion Cognitive behavioural therapy for neurologists, 2023, Stanton, Chalder and Carvalho

    Abstract In neurological practice, we take pride in accurate diagnosis and using neuroscience to develop novel disease-modifying therapies, but...
    Thread by: Andy, Nov 7, 2023, 10 replies, in forum: Other psychosomatic news and research
  19. Andy
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    Thanks. Honestly, it's not worth being in a separate document. The full text is INFORMATION FOR STAKEHOLDERS Development of a Delivery Plan on...
    Post by: Andy, Nov 7, 2023 in forum: News from organisations
  20. Andy
    Post

    Long Covid in the media and social media 2023

    Boris Johnson may not believe in it, but long Covid is real – and underfunded Danny Altmann "Among the more sobering moments at the UK Covid-19...
    Post by: Andy, Nov 7, 2023 in forum: Long Covid news
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