I don't respond well to people who claim a cure but you have to buy the book to find out what it is.
I want to tell people I have a long term chronic illness that makes me feel ill all the time and limits my ability to do things, and that it's a...
Also posted and discussed here: #ThereForME campaign / Building an NHS that’s there for Long Covid and ME
I assume Dr Kane knows some of them, and the people who run the #ThereForMe campaign are in contact with others through Long Covid support groups....
Good to see so many in support. A few surprises given their previous (current?) attitudes towards ME/CFS. If anyone can encourage more clinicians...
Posts about a letter to the UK secretary of state for health, and media coverage, have been moved to: #ThereForME campaign / Building an NHS...
A post has been moved to the discussion thread about the template....
I agree. It's unsuitable because of length and wordiness for anyone with severe ME/CFS. I got around it by not reading all the detail, and just...
I agree there is a big problem here. I think I recall that the first version of this questionnaire did not include PEM at all, with the second...
Can you explain more about what inflammation is, and why you article is wrong?
This thread is worth reading about Aylward's impact on DWP and ME/CFS Blaming the victim, all over again: Waddell and Aylward’s biopsychosocial...
Moderator note We have read the discussion of whether posts should be moved and taken note of points made. We have decided to leave most of the...
I don't get that impression from the information on the other thread: (Baker Institute, Australia) "Funding to advance understanding of the...
I'd put that the other way around. Patients who experience more CFS symptoms are likely to find the testing process more stressful.
The detail you're asked for for each symptom is not useful for spotting changes, for example, This does not distinguish between severe nausea...
Medications can also change resting heart rate. I was prescribed a daily inhaler for my mild asthma to try instead of relying on occasional use...
Go to this thread for discussion:...
This is a quote from the blurb at the start of the questionnaire, see my previous posts. So after filling in all that detail, which to my mind is...
[SPOILER]
Separate names with a comma.
