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For the record:
:hug: @bobbler, that was heartfelt. Thank you for sharing your thoughts so openly.
I agree it's an important problem that needs to be addressed. I think there's often little or no understanding that someone who walks into a...
Fibronectin was found by Prusty in ME/CFS: Preprint Increased circulating fibronectin, depletion of natural IgM and heightened EBV, HSV-1...
Fair enough. Any member is free to report posts that have been moved and explain why they want them left where they were posted. Sometimes we copy...
Perhaps it will help us understand the point you are making about relevance of the discussion if you share these 4 pages of points relevant to the...
Hmm. My immediate response to reading this was that it's a problem if the subgroup you belong to is determined by which research group analysed...
I get the argument that really well trained doctors don't rely on biomarkers for diagnoses. But most of us in the UK with ME/CFS only have access...
That sounds like an extremely skewed sample.
I think there is a world of difference between disability and disabling illness. I tend to say I have the latter, not the former. Many people with...
It's now over a year since we sent our first letter to Cochrane (28th August 2023), and started our petition (4th September 2023). It is fast...
I have just sent the following reply to Sonya Chowdhury. I decided to make it a personal reply rather than trying to get agreement from all the...
I think it depends whether you're talking about prevalence or incidence of new cases. I think prevalence of ME/CFS in older people like me is...
Thread on the PhD thesis that includes this research: Exploring the role of tryptophan metabolites in ME/CFS: Development and application of high...
A published paper from this work is discussed on this thread from February 2024: Analysis of tryptophan metabolites ... in human and murine tissue...
Can AI or machine learning algorithms do the work for you? @mariovitali may have useful comment to make on the work he's done.
Maybe the reference to rubbish is the headline, which seems to me pretty odd.
Website: https://cureme.lshtm.ac.uk/me-awareness-day-2024-global-voice-for-me/ I can't find anything about the event on their website. Does...
In theory a great idea, but... Anyone doing a study should do a preliminary literature review beforehand to see what's been done already, so such...
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