It's a public thread, anyone is welcome to share the link.
We've been asking for longitudinal studies like this for a long time. I don't see why someone can't do one with proper funding.
Do we have evidence of puffy faces? I'm not aware of any. Nor have I noticed it in myself ir my daughter, though for myself I'm not in a fit state...
You are not alone. I'm the same. My PEM that fits the definition of PEM including delay, worsening of all symptoms and new ones, as spelled out in...
I have different responses to the different stimuli. [SPOILER] [SPOILER] [SPOILER] [SPOILER]
Thanks, @EndME, yes, I left out cognitive which needs to be included. I'll add it to the title and first post.
I have started a new thread here Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or...
I have started this thread in order to reduce diversion of another thread where the subject arose. Here are a couple of quotes from that thread:...
Why does the fact that for some pwME sensory sensitivities set off worsening of symptoms mean that exertion triggered PEM and studies such as 2...
I think the Dr Jake Hollis one is worse in a way, as he repeats as fact the unevidenced stuff about stress, adverse childhood experiences,...
Moderator note Mods have been asked for advice on what is allowed by our rules in this discussion. This is the relevant rule: This means that if...
The writer of the article completely misses the point that there is no evidence to support brain rewiring as a treatment for ME/CFS, and she...
Is it possible for a patient who is very sick to be sedated for a long ambulance trip?
There is no detail given on the 'specialist centre'. I hope it's not CBT/GET.
I'd be wary of a UK ME/CFS public enquiry while the likes of Wessely, Sharpe, White, Chalder, Moss-Morris et al are still influential. The desire...
If you pick a few at random from the subforum labelled: Psychosomatic research - ME/CFS and Long Covid You'll come across plenty that claim an...
I also like the invisible electric fence image. My one I invented before I even knew about PEM was that my life was like walking a tightrope where...
I've glanced through the transcript. There seems to be a lot of telling each other what wonderful doctors they are and how exciting it is to be...
Can someone alert them to Wesselyite psychiatrist Dr Ben Shepherd who is a tory shadow health minister. If they are doing parliamentary advocacy,...
I don't think we have seen any evidence of preexisting psychiatric illness being a risk factor for developing ME/CFS. The studies of people...
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