They have got it right about the need for rest. The rest of it - dietary changes - low histamine, gluten free, microclots, cold water therapy,...
I'm lost for words. The insensitivity is breathtaking.
Number of patients First visit 175 Second visit 92 Third visit 43 How can they conclude anything about recovery rates when only a quarter of the...
On this aspect of AfME's work, the recent correspondence with Sonya over the care plan template fiasco may be of relevance. I have just posted...
I had the following reply from Sonya on 14th September. Sorry for not posting it earlier. I will reply briefly thanking her and explaining I don't...
I have never been able to do any sort of fitness or strengthening regime since getting ME/CFS because fulfilling my daily responsibilities and...
Do rheumatologists (or some other specialism not neurology or psychiatry or rehabilitation medicine) have a separate body that could be approached...
As far as I know the big reveal of his discovery he promoted on social media was presented in the paper discussed on this thread: Preprint...
For those who don't have access to Apple podcasts, the BBC World Sevice lists all its podcasts here:...
Thank you. I think we need to coordinate it privately. I haven't discussed with the committee how we do this. I'll add your name to people...
We have that in mind, though currently don't have the capacity to organise it quickly.
:rofl::banghead: Thanks, as bad as I expected.
It might be interesting to try it on a rubbish paper like PACE or the Larun Cochrane review. See if it picks up the flaws....
I've just re-read the MEA article introducing this version of the PASS questionnaire, quoted above. This makes it clear, along with the title of...
I'm not impressed with those 2 transcripts. I may be missing something, but what's the point?
It occurs to me that use of a questionnaire like this by a therapist is a way of distancing themselves from the realities of the pwME's life....
You're right on all counts. I reacted in my rush through it yesterday more positively simply because it's an improvement on the on the original...
They could have said all that 100 years ago.
There are still significant problems with this, such as the meaningless question 12 about what level of activity triggers PEM, with no benchmarks...
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