If there is a drop off in probability of ME/CFS after successive Covid infections, the most likely explanations seem to me either a high...
Exactly this. When mild and still working, I had to lie flat for at least an hour before getting dinner. I resorted to taking a lay back garden...
Some people with Long Covid describe what sounds to me like more symptoms than months of exhaustion, including PEM that forces them to bed for...
It seems like you are describing a difference in severity levels, and the presence or absence of OI and of PEM. I can only speak from my own...
Early 2023. According to the November 2023 update, there are multiple stages for the protocol to go through:...
A reminder of a few dates: In one week's time it will be 5 years since the review was published on 2nd October 2019. On the same day the editor...
Thanks @Peter Trewhitt. I have just come to this thread to do the same with my recent post on the Talkpage which still awaits moderation, and...
More at link. https://precisionlife.com/news-and-events/precisionlife-and-metrodora-institute-share-first-insights-with-metx-study-participants...
I think you need to be careful with trying to make your own nasal sprays. Better to buy one recommended by a pharmacist perhaps. Another option is...
See this thread: https://www.s4me.info/threads/usa-the-recover-initiative-long-covid-research.30525/page-10#post-548860 Agenda:...
I think the point of specialist nurses is they work in conjunction with a specialist doctor, not in isolation. This is what happens with MS and...
copied from UK news I've just been listening to a BBC podcast on the Covid Inquiry where a senior nurse was in tears describing having to have...
I've just been listening to a BBC podcast on the Covid Inquiry where a senior nurse was in tears describing having to have critical care nurses...
Lots of the things they are attributing to lockdown are unlikely to be related, for example, kids starting school now (aged 4 to 5) not being...
My daughter was diagnosed by a rheumatologist and the same man did a good report that got me ill health retirement. He clearly believed ME was a...
Moderator note While this hypothesis is interesting, it is as yet unproven, and the subtypes described are hypotheses, not a proven protocol for...
I think there's no better option than rheumatologists as things are at present. Neurologists will put us in FND and prescribe rehab, Rehab...
Hi Karen, Welcome and I'm sorry you haven't been able to post yet. I've alerted the doorkeeping/mod team to see if we can sort out the problem....
That's a really good comprehensive report, @Hutan. I hope the people you submitted it to take notice.
Does it say what people should do if they are on ESA and don't receive a letter by the end of September?
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