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  1. Esther12
    Post

    Patient: "The latest thinking on chronic fatigue syndrome"

    I didn't think that this was very good at all. I'm not going to pull out all the weaker bits, but thought I'd mention this bit from Shepherd:...
    Post by: Esther12, Dec 21, 2018 in forum: General Advocacy Discussions
  2. Esther12
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    By weird coincidence, I just happened to stumble upon that letter myself today, as I was reading one from Wessely that came before it:...
    Post by: Esther12, Dec 21, 2018 in forum: ME/CFS research
  3. Esther12
    Post

    Who said: 80% of ME is post-infectious

    Doesn't really sound like a solid claim for the main page on ME. Thanks for those looking into it.
    Post by: Esther12, Dec 21, 2018 in forum: Immunological
  4. Esther12
    Post

    Measuring fatigue. Discussion of alternatives to questionnaires.

    I don't hold out much hope of coming up with a questionnaire that will not be prone to problems with bias. I do think that there are better ones...
    Post by: Esther12, Dec 20, 2018 in forum: Post-Exertional malaise and fatigue
  5. Esther12
    Post

    News from Scandinavia

    Thanks for all these updates. It sounds like things are looking up in Sweden. Thanks to all the patients who've been working to improve things...
    Post by: Esther12, Dec 20, 2018 in forum: Regional news
  6. Esther12
    Thread

    Measuring fatigue. Discussion of alternatives to questionnaires.

    Moderator note. Thread moved from:...
    Thread by: Esther12, Dec 20, 2018, 47 replies, in forum: Post-Exertional malaise and fatigue
  7. Esther12
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Moderator note. Thread on measuring of fatigue has been moved here:...
    Post by: Esther12, Dec 20, 2018 in forum: ME/CFS research
  8. Esther12
    Post

    What I’ve learned reporting about Lyme disease, a contested illness - David Scales

    It is rational to prefer RCT results over anecdote. There are still plenty of potential problems with RCTs, but anecdote-based-medine has an even...
    Post by: Esther12, Dec 20, 2018 in forum: Infections: Lyme, Candida, EBV ...
  9. Esther12
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    ME too.... but I've been left feeling deeply cynical about the whole process though. Their response to criticism of those appointed to the...
    Post by: Esther12, Dec 20, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  10. Esther12
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Thanks so much for that.
    Post by: Esther12, Dec 20, 2018 in forum: ME/CFS research
  11. Esther12
    Post

    A general thread on the PACE trial!

    So people who move towards a form of pacing with the aim of feeling better and being able to do more are really doing GET? I think that the...
    Post by: Esther12, Dec 20, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Esther12
    Post

    Concerns about Cochrane

    There are lots of people to oppose, but so few to support!
    Post by: Esther12, Dec 20, 2018 in forum: Other health news and research
  13. Esther12
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    I hadn't really understood why Edwards was referencing the Bilko episode where they're trying to beat records for inducting new recruits... but...
    Post by: Esther12, Dec 20, 2018 in forum: ME/CFS research
  14. Esther12
    Post

    2014 Impact case study - Queen Mary University of London (QMUL) - CFS

    It was a transcript of a recent podcast that gave me that impression. Maybe these notes:...
    Post by: Esther12, Dec 19, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. Esther12
    Post

    2014 Impact case study - Queen Mary University of London (QMUL) - CFS

    I feel like Wessely was starting to try to find a cautious retreat, acknowledging that maybe he was a bit too dismissive of patients' concerns....
    Post by: Esther12, Dec 19, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. Esther12
    Post

    A general thread on the PACE trial!

    Matthees had compiled comments from PACE trial participants for his tribunal case, so the comment could be in there (although many more have been...
    Post by: Esther12, Dec 19, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Esther12
    Post

    Estimating Prevalence, Demographics and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning, 2018, Valdez, Proskauer et al

    It's so hard to get accurate info on prevalence when there are still legitimate controversies about how CFS should be diagnosed. The male/female...
    Post by: Esther12, Dec 18, 2018 in forum: ME/CFS research
  18. Esther12
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Yes, but we still don't get biological measures of immune response immediately as infection begins.
    Post by: Esther12, Dec 18, 2018 in forum: ME/CFS research
  19. Esther12
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    I think it was justified to try to make use of funding for CFS to look at the side effects of interferon alpha, as that provided a convenient...
    Post by: Esther12, Dec 18, 2018 in forum: ME/CFS research
  20. Esther12
    Post

    Swedish agency for health technology assessment and assessment of social services (SBU) with report on ME

    I'm not so sure about the value of the Canadian criteria (I'm not too sure about the value of any particular criteria at the moment) but this...
    Post by: Esther12, Dec 18, 2018 in forum: General ME/CFS news
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