I’ve just scanned through the trustees. They do have a large proportion of trustees that claim to be affected directly or indirectly by ME...
I think this is where one should start for general lifestyle advice in th UK https://www.gov.uk/government/publications/the-eatwell-guide It’s...
And what is the evidence for this statement?
I’ve often wondered about funding. When I first got sick, I was advised to avoid AFME and look for support from the MEA by people employed by the...
The only thing worse than soggy toast is burnt toast ...although if burnt to a crisp it may hold up to the custard layer. I think that product...
Please don’t touch carbamazepine with a barge pole ...it’s not worth it...the side effects are awful
I have pain quite a bit. Paracetamol and even those great big pink ibobruphen horse pills do nothing. The onay thing that worked when nothing...
I didn’t feel at the time that my behaviours were being charicatured and they did acknowledge that this wasn’t my fault but part of how to manage...
Yes that is what I meant @TiredSam ..I do resent words being hijacked and I was really after finding a way of describing non paced activity to a...
I’ve found this thread useful to get my head around the terms since having undergone pacing and then GET at a CFS clinic I’ve always had mixed...
I suppose it’s a matter of perspective...the sloppy can’t be bothered researcher who doesn’t know what she/he’s doing might think so?
Is this like the one when you have to work out who’s lying
I cut down on sugar and refined carbs (they are effectively the same thing once they reach the stomach). I don’t see any carbs as bad. This is...
Hi Clare @Action for M.E. I would like to also thank you for engaging, but also add my voice of concern to your recent statement. This seems to...
The thing I don’t get about defining predisposition by personality type is the fact that personalities are not set in stone. I am borderline...
Thank you @MEMarge
I tried it fairly early on into my illness with music and various sounds...but I found these distracting/irritating. I’m mild moderate but I...
It is definitely not a doctors job to teach people to eat a healthy diet. This is a personal lifestyle choice and the responsibility sits...
I hear you, but that still doesn’t mean you can quote the research with much confidence...just look at ritixumab ?
He’s always seemed weird to me (in a good way) from the get go ..funny isn’t it ...takes one to know one I suppose?
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