It’s much better to have a dissociative seizure alone at home, than in a workplace where others can summon medical attention. Obviously. And given...
I suppose they’re being relentlessly harassed and threatened now….
Here is a screenshot of a cartoon in the replies. It includes the F word
Aha, yes the “in the chat” comments were referred to towards the end of Tyson’s talk- after she has extensively derided them. The people in the...
The issues with wearables seems to be that because they’re all different in how they measure, and she doesn’t know the “under the hood”...
[ATTACH] a lot of comments in the chat about wearables being incredibly unreliable and not recording
I’ve accessed and downloaded the closed caps document. Here are photos of Tysons talk I only skimmed it the PROMS data can be used for clinical...
We need an anti-coach to train us not to do so much “Come on, keep going, keep lying down! Don’t look at the state of the place, do not think you...
That may be lost in translation!
I know what I was trying to think of, but couldn’t. Emotional Labour? Mental load? Mental load is usually described as the unseen/behind the...
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Yes it would! I would hope the producers are aware of the guidance, but then again I can think of some ME clinics/physios who would happily...
I wouldn’t really expect a review to ask about work, but I would have expected a review of my ME to end up with me talking about work as that was...
The NICE guidance states exercise- physical activity should be overseen by ME/CFS specialist...
When I was mild I started jogging again. I also started cycling too. Never as far as I used to, never as regularly as I used to, it was good 6...
To be honest, having a chat with a professional might just be what you need. I knew I was in trouble for a few years, but work, mortgage, life,...
But exercise is good! Just because you can’t do it, or it makes you incredibly unwell isn’t a reason to slack off! I so wish I was a fly on the...
I was being somewhat facetious, they wouldn’t care for reported outcomes 3 years after last being seen in the clinic. The PROMS are to confirm the...
Yes, I was thinking it could be done by a practice nurse, like the diabetes, asthma etc
Maybe there should be an annual review PROMS
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