Maybe there should be an annual review PROMS
I really, really hope you ge a polite apology. I’m sure they think they’re being brilliantly inclusive. I wonder whether they would be up for...
Care and support plans...
Once a year review in primary care is the NICE recommendation https://www.nice.org.uk/guidance/ng206/chapter/Recommendations#review-in-primary-care
I think it would be a good question for the APPG - what about long term 3,5,10 year monitoring of ME? For context, most clinics discharge patients...
Delivery plan!...
Well how about they check up on us every year, once a year, say for 5 years?
So THAT’S why they don’t
I mean, the wearables debate is a debate, but frankly I’m not convinced by Tyson’s arguments as to them not being an option. I note in the...
You need the “baseline assessment tool” and the third tab from left “data sheet”...
The nice guidance includes a template care and support plan. I started a poll to see if anyone had got one filled in. They hadn’t.
It’s the “new generation” of recently diagnosed which PROMS will capture, which is a bit interesting as wearables aside, they’re highly likely to...
I suspect that a majority of people being diagnosed with ME are 20-40 age group, and they are likely to have Apple Watches, fitbits and the like....
There are certainly pockets of the NHS doing great things with digital innovation. And there’s an overall leadership desire for it. These PROMS...
Do we really need a “data set” of everything pwME do/can’t do/wont do - at the level of “brushing my teeth” and “made a coffee” I’m not being...
It’s just an excuse. They’re doing the thing they want to do. They want to do PROMS with paper questionnaires they way they want to, that’s all.
You’re supposed to do it monthly for a year, so you see any variations. You’re reflecting on the month just gone, so you’ll have an idea of how...
That’s how I say it in my head when I read it too pee eee emm
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