But the point I made earlier is that the NHS is looking at wearables, there have been pilot studies on FATIGUE for patients with Parkinson’s etc...
Actually, point 53 is just bunkum “physical and/or emotional care such as supervising homework…” Surely that’s a cognitive task
The MEAQ seems to be looking for “avoidance” and use of “adaptations” yet the FUNCAP allows for avoidance. Honestly the MEAQ feels like something...
I feel like this opinion of Sarah Tyson is a red herring. That's because FUNCAP is asking you to grade based on the past month. So is PROMS. so...
Dr David Putrino is using the Visible data, I’ve given the researchers permission to use mine. Visible has a mix, there’s the RHR/HRV monitoring...
It’s Sarah Tyson’s world, we just live in it.
“Flu-like symptoms” does it for me. And certainly, if I were to write using medical language like pharyngitis, lymphadenopathy, cephalagia etc...
I thought she’d said here PROMS was NOT to be used for clinical trials I guess if she found FUNCAP difficult to fill in, she’s speaking on badly...
Off to read, thanks for the update
I was reminded of an earlier post by Sarah Tyson that she said wearables aren’t actually possible to use in the NHS, none met the regs of the...
I feel like the MS PROMS were mentioned earlier in this thread* [the thread mentioned in the first post]
But they didn’t have enough stock for those prescribed it the other year, and it’s been that way for a while. And it’s used for other conditions...
Menopause is one of “those” things that seems to get the GP’s back up. Nothing worse than going to a GP with a suggestion of what maybe wrong,...
I wrote that quote, not Bobbler. They may have quoted me when replying. Malaise should never be used interchangeably with fatigue, however people...
Can’t wait to see the video when it’s released in a few days
It makes them look paranoid
It is. They decided what they wanted to do, then asked some pwME for feedback. They also engaged here and chose to disregard all feedback. That’s...
Much better to let them put their silly disclaimer then experience *absolutely zero abuse*
It’s sad when my friends start getting brain fog and poor sleep. It’s like an unspoken dread that they’ll end up like me
I’m happy with the reports which visible spits out, and I can request further CSV symptom data extracts if I wish. I could do that and crunch the...
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