I’ve used free trackers like Bearable in the past to track symptoms. I often can’t speak so an app is preferable. There’s an issue with your...
We certainly could, but it falls on deaf ears!
A lot of definitions of malaise are “a feeling of unease” which can be read more than one way. Certainly if you feel ill, you are not at ease. But...
I agree, I don’t think it’s used “medically” and in general parlance Ithink it’s used interchangeably with fatigue
Oh they reiterated that they had a duty to deliver the information “to everyone” and this was the best way to do it. In fact they repeated that...
Each of the 100 people will have a different understanding of PEM. More than 80 will be in boom and bust.
It’s me!
My friend was tired after a night out, she asked me if I ever feel so tired my bones hurt. I had no idea non-ME people could get that tired! I...
I do wonder if mine weren’t whipped out (as was usual back then) because they weren’t “really” getting tonsillitis. As in, any sore throat used...
I had a medical appointment today. I’d tried to ask in advance how long, no info. I travelled a long way there, early. They wanted me to be there...
This was exactly how I was. Always getting a “virus” until I was able to differentiate a real one from PEM. In rolling PEM - boom and bust cycle....
Has anyone very studied PEM (PESE) or done actual research on it? It does seem to suffer from a lack of definition. Interesting that other people...
So there has been PROMS questionnaires callers TIMES, PASS and now MEAQ one thing I will say is I believe Sarah Tyson does have ME, by the way...
I was diagnosed with Fibromyalgia first, I have no idea whether I really have it though. I have pain it waxes and wanes. Who knows? I’d like to...
So much info about pacing is minimising the importance of it , there’s always a bit about how it “helps you do more” or some success where someone...
Most of them think pacing will lead to allowing them to increase activity
Within one year, at least 50% of the women will sigh if you say “have you tried yoga/pilates/going vegan/keto/fasting”
A high % have been advised to start antidepressants and/or talking therapy
There’s a fair few complaints on the MEA Facebook post, Charles Shepherd has been replying, holding the line.
Don’t forget we have the emotional support thread that was started after Sarah Tysons comments upset people. I just keep thinking, only 1 year...
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