DEID means dead if you’re Scottish!
Thanks, I’ve been saying it!
I agree- white text on dark kills my eyes! Anything on an app should of course also be easily available in other formats like paper. Bit harder to...
Yes South Yorks mental health has earned a place on my DNA (do NOT attend). FUNCAP is lovely to fill in, 0-5 answer levels stay displayed at the...
I’m sure he’s still doing his regular physical training, now he’s recovered.
I just saw the profile for Sarah Tyson on the BACME conference thread. A bit surprised she’s involved with Physios For ME as a “lay...
I said I wanted to do some reading and I have not done it (yet!) but one theme I wanted to revisit is that of the “PROMS creates a data set which...
I don’t think that acronym would work in Scotland!!!!
I just did mine :) that’s what made me think. The options for reply are really”ME/CFS”.
Are they using the FUNCAP questionnaires? Because they’re quite good, validated and already exist
We have a fundamental disagreement about the nature of the beast, we can’t work together. Proms is a round hole and we’re a square peg.
Spot on -this is an example of the “take a “normal type person” look at what they do in a week and then look at reducing it, when really it should...
Urgh that’s even worse!
So, help me out. During the pandemic I was doing the Zoe survey, then fast forward and Zoe and Tim Spector are selling a diet device. To be honest...
But but but Sarah Tyson has ME, she assures us Gladwell “gets it” and is a “good bloke” as is the other “good bloke”.
There are patients with ME, then there are patients with ME… I suspect we are “the wrong type of patient” as usual
Well I do a lot of things at one point in time, but then avoid doing that same thing at another time (so I can do other things) so one day Imight...
I can’t quote the post @JemPD but here is a screenshot “no I avoid doing this so I can do something else”
That’s what you do - reduce your overexertion. Stay under your pace points.
Pacing has always been about resting. This is just a scientific way to see what your body counts as rest or exertion.
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