https://workwellfoundation.org/wp-content/uploads/2023/01/HRM-Factsheet.pdf
It has the self-reported activity tags, daily symptoms by severity and the monthly FUNCAP. They’re at the point they can predict HRV days ahead....
Excellent Trish. I’d like to review some items before making suggestions if that’s ok, will maybe take a few days. What I have in mind is to...
Actually laughing that Gladwell published a whole paper undermining the CFQ then went on to produce this rubbish. yes they did, we discussed it...
I don’t know who regulates Tyson or Dr Gladwell. Could be HCPC, depends what regulated title they use.
This is the third questionnaire- how many are there in total? It would be worth adding them all together to get an estimate of “time” and also...
I think it’s great they are looking at publishing imminently. One in the eye for BPS and a massive step forward for patients.
They’ve done PROMS for mental ill health in NHS...
I wish we could have seen the presentation toBACME that Tyson and Gladwell gave the other day
They put together a Patient group from applications on the MEA website
I thought one of the other two questionnaire was about “what is vigorous activity for you and there was debate about how that was subjective and...
I mean, first of all, the thing to do would be set out descriptors 1-5 then just ask you to rate the following 90ish activities, no? I’m not a...
It’s ok, they’re going to email everyone who takes the survey again, in a couple of weeks. Why? “To see how answers change over time” apparently....
Actually, what did they base their design on? For this latest questionnaire? It does read like they’ve just thought it up in a meeting, rather...
I’m level 4 but only moderate ME
Also, I don’t see the difference between level 3 and level 4? they’re the same except you need assistance when going out of the home,
I’d say they can’t use those questionnaires, they’ve asked people to tick that they’ve read the info leaflet, you have to do that to complete the...
So any questionnaires completed when info sheet was unavailable must not be used, surely?
So in summary 1. Patient info sheet is inaccessible 2. Errors in questions 3. Length of survey is unacceptable 4. Survey plus length of other two...
The relevant “regulatory authorities” would seem to be GMC...
Separate names with a comma.
